Not sure where to start. Breast cancer diagnosed in February and double mastectomy end March with DIEP reconstruction. Part of one breast now tissue has died and will need further treatments:/not sure what.

Been on letrozole for 4 weeks. Everything is aching, and I’m tired and emotional and work referring me to Occupational Health (suspect line manager thinks swinging lead).

Finally hitting me that I have no breasts and I’m exhausted and in pain and emotional. Abdominal pain due to scar healing and breast sore/swollen, underarm lymph node scars also still very sore. Can’t face work yet and feel like everyone has now moved on / expects me to be better!! I’m pretending all okay for everyone else then sit alone and have hot flushes and feel terrible.

I know all the things that I should be feeling like lot to live for etc but I’m just low!! Any advice?

hi

totally can relate to you with the emotions sweats and feeling different 

the only advice I can give you is take your time don’t rush things I did and hubby was so annoyed this is a major change to your life and  I’m struggling still finished radiation feb

i saw doctor and explain things to her I felt so much better please try ringing the breast nurses they might help 

but chat honestly be open how you feeling I still have t moved on but getting better but takes time and you are not alone 

Thanks so much for responding. I’m booked in to see GP next week. Best wishes 

Hi 

I am reading these posts on here, I thought I was the only one feeling like this , I finished radiotherapy last November, have been taking anastrozole since last September, I saw the oncologist in Jan who then discharged me, I have terrible hotness, I'm awake half the night, my joints ache, I'm feeling really low and so tired. I thought this is just how it is going to be now. Because the treatment has ended I was expecting to get back to normal but it's definitely not happening. I have spoken to a breast care nurse to have an appointment to maybe try another tablet.

Oh bless you. Not the right thing to say but I’m glad I’m not alone (you start to feel it’s just you and you need to pull yourself together).

Hope there’s another tablet that will help. I’ve only just come to this forum but it’s helpful to see what others are experiencing and we are not alone. Stay strong x

Hi 

Thank you for your kind words, I too are new to this, first post early hours of this morning! It is very helpful to know what others are experiencing as I too kept telling myself to pull myself together, it feels like a brick wall is blocking my way! 

It is good to know we are not alone x

I know what you mean. I've been on Letrozole for almost a year and I have no patience, feel irritable and have a low mood. I take turmeric capsules which seems to help the joint pain. I'm seriously thinking about stopping taking Letrozole. Hope you had success with your oncologist.

Nora 

Thank you Nora for responding . I have just started taking the Turmic as well hoping to improve the joints at least .  Hope you get some help to with your side effectts 

kaz

Hi all

Hope you don’t mind if I join your chat but it’s all very interesting.

i have just had my mastectomy and due to start letrozole (for the next ten years ) in the next week or so.

I had BC many years ago and as I was very young at the time I refused to take Tamoxifen, at the time no proof it was anything but negative for me personally.

Roll on 28 years and I’m here again wondering if letrozole or any hormone therapy is going to be for me?

Ive read a few journals and taking hormone therapy does improve your chances of recurrence but not by a huge margin so is it worth the side effects?Maybe I try it and if it’s bad I then at least have given it a go.

i do want to beat cancer and am still reasonably young but also want to enjoy life and the thought of feeling crap scares me more.

Good Luck all

Gx