Cancer 3yrs on: I am experiencing vertigo

I am finished my chemotherapy and radiation for breast cancer 3yrs now, and I have been on Tamoxifen for 3yrs as well.  For the past few months, I have had vertigo (not the inner ear type) which leaves me very tired, tired legs etc and fed up to be honest, has anyone experienced anything like this please 

  • Hello Suzy1 and welcome to our forum, 

    I am sorry to hear you have been experiencing vertigo recently. I can understand why this is making you feel exhausted and that you have had enough. I hope you will get to talk to others on our forum who have experienced this too. 

    I hope you don't mind but I have slightly edited your title and added the words 'I am experiencing vertigo' so that others who have also had this specific problem can spot your post more easily and hopefully respond and share their story with you. 

    If you haven't done so already, I would suggest you speak to your doctor about this and ask whether this is or not related to the cancer treatment.I am sure your doctor will be able to advise you on this. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • I am exactly the same! 3 years on and I have been experiencing vertigo, headaches and generally feeling unwell. This has been going on for four weeks currently and I had the same feeling of vertigo in November 2018 but only for around 4/5 days. 

    I too am fed up to the back teeth! Not being in work for 4 weeks and not being to do much at all takes me right back to the days when I was immobile due to treatment. That doesn't make me feel very happy at all. I totally am with you on the fed up side of things. 

  • Hi 

    I just wanted some advice. My mum currently has stage 4 BC with mets in the liver. Finished dosetaxol chemo in January and is still on pertuzamb and Herceptin every 3 weeks. She was doing extremely well but from last week has gotten terrible vertigo to the point where she is so stumbly on her feet. I am terrified it has spread to the brain. 
    -any advice on how you where during this time or what you got to control it?x

     

     

  • Sorry to hear about your Mam, I had vertigo very bad a few yrs after treatment. I tried different medication but nothing worked, I honestly think that my vertigo was just worry and stress, I had an appointment with my oncologist but it was a different doctor I met, and to be honest she frightened the life out of me, I have the BRCA gene and she made me feel like I was a ticking time bomb.  So I concentrated on my stress and worry and it made a huge difference. 
    Chemo is so hard on the body, I was very healthy before cancer, and I struggled with it so bad. My sister had to have chemo too and we still talk about "chemo brain" it's hard to explain it but I'd be walking up my hallway and the ground would come up to meet me, or I'd be walking across the room and I'd "take off" across the room. Even someone sitting down into the sofa beside you would actually hurt your brain.  
    i hope this helps it's probably a side affect of the chemo I'm 5yrs on now and still have an odd "chemo" day 

  • Thank you so much. I'm really hoping this is a side effect of treatment just but also terrified at the same time that it has spread to the brain. How long did it take for your vertigo to settle and did anything give it relief? It's so difficult to watch especially when you don't no the exact answer. She saw oncology on thur and they have put it down to vertigo at the minute.  Her bloods where perfect and they still give treatment. She has regular scans but they only ever scanned the brain in the first instance 

     

    much love

    xx

  • Hi just read your post. Did your mum find out cause of dizziness? And how is she now? I've just finished 18 treatments of herceptin & pertuzumab and also feeling dizzy with nausea for  weeks now, worried something is wrong, 

  • Hey sienna87

     

    unforfunately it wasn't vertigo at all. The BC has spread to the brain with multiple mets. She has had WBR and now on two different chemo tablets again which are making her sick. 
    I would Definately mention to your oncologist it could be something simple but just to be sure. 
    xxx

  • Hi thanks for reply very sorry to hear that. Can I ask if it was diagnosed with CT or some other way?

  • Yeah it was diagnosed with CT. my mum completely lost her balance and really dizzy . Most of these symptoms have now gone since the radiation although the chemo tablets are tough on her xxx

  • It sounds awful for your mum to be goong through it all but hope the chemo keeps it under control and she is more comfortable. Sorry for the questions take care x