Hello Irondas and welcome to our forum.

I'm sorry to hear that you were diagnosed with kidney cancer and are now having what sounds like a tough time recovering from your surgery but I'm glad it was caught early.

Hopefully some of our members who have been in a similar situation will come along shortly with words of advice and support but until then I thought I might leave you with some info we have on our web page about kidney cancer surgery (follow up). I hope this can help a bit.

Also, feel free to give our cancer nurses and ask any question you may have. Their lines are open Monday - Friday between 9 a.m - 5 p.m on 0808 800 4040.

Wishing you a speedy recovery,

Renata, Cancer Chat Moderator

I had my kidney out 7 months Ago after 6 weeks started feeling bit better, then started getting pain in my stomach after ending up in casualty they said thought was nerve damage so now this so called nerve damage is round my hip little way down my leg and started going round my back its excruciating and wrecking my life,, just wandered if anyone else has had this problem 

Hi berh I had keyhole surgery on 18/2/20 to remove my right kidney. It's been 11 weeks now. Like you I'm getting pain in right groin shooting down leg, occasionally. Also still swollen and very tender around scars and my side. I wouldn't say my pain excruciating but constantly nagging away. Some days worse than others

Hi Folks

Having NOT been diagnosed by GP despite 15 months of blood tests and NOT being told I had cancer I find that my medical recoords refer to Kidney disease! I was eventually rushed to hospital by ambulance having passed blood in my urine and in intense pain. Initially told it was probably a kidney stone a CT scan showed a large cancer tumour growting on the right kidney which wass too big for keyhole surgery! Having controlled the pain due to corona virus I was sent home despite the consultant telling me the poor diagnosis. Prayers answered I did have the op 2 weeks later following a bit of a drama. I now have a 12" scar on right side. Area below the scar is basically numb but the area up to 2" above the scar is driving me nuts. Its so sensitive to touch and feels like a 1000 nettles have been rubbed into the skin. I have 4/10 pain reaching around the side to my back now.  Does anyone else have the nettle pain! Any ideas how to settle this infernal irritation down, even a little?

Thanks in anticipation. 

Hi Boon

I had a similar operation at the beginning of December 2019. An 'open' Radical Nephrectomy with the right kidney being removed and inspection of a suspect lymph node, which turned out to be an ectopic gland. I have a roof top incision an inch below the rib cage leaving we with an 18'' scar, 8'' on the LHS and 10'' down the RHS. I have numbness about 3'' below the scar and had slight stinging above for about a month which subsided. The ends of the wound internally were lumpy and I had one spot on the wound with a lump which wept (tear like) for about 2-3 weeks. These sorted themselves out over time but the numbness below is still there.

I'm 54 in 3 weeks and was relatively fit beforehand, 6'1'' tall and 105kg before the Op. I lost about 15kg over 4-6 weeks but am now back to 100kg. I cycled and went to the Gym spinning before being diagnosed in Aug 19 and walked the dog daily. After 5-6 weeks I could walk about 2 miles and 2 months ago I started cycling again, short rides with the dog running of about 6 miles and have been on the road bike 3 times now over 20 miles each time. I cut the grass regularly and garden and cut the bushes (50 metres) last week

Im getting back lower rib ache, I presume where the kidney was and what feels like a twist to the RHS scar internally when I push a heavy supermarket trolley or use the lawnmower.

I'm putting this down to getting on with life and doing things but sometimes it does play on my mind if things are OK? I have a check up CT scan on the 4th June and review on the 10th so keeping my fingers crossed.

It is good to find a site with shared experiences and not just the post op weeks standard stuff. Good luck with everything settling down and please keep in touch with updates

Stay safe and positive 

IM

Hi IM

Thanks for taking the time to reply. Appreciated. I had teh same op same kidney but only a 12" cut they took some lymph nodes away to check if teh cancer had spread. Apparently not, thankfully. Consultant wants another CT scan 3 months after the op rather than teh standard 6 months for some reason together with further blood tests ahead of a meeting with him. I can put up with the various pains I'm experiencing but this infernal irritation for some 2" above the cut is driving me crackers. Only relieve is not wearing a top of any discription or a cold flannel when lying down. Hope your scan proves positive. I wish you the best.

Kind regards

Boon 

Hi Boon

Thanks for the update. Thinking about it, I could only wear soft T-shirt's for a couple of months as rougher material Polo tops felt like electric shocks across the scar. I tried Bio oil on scar but it's a bit too oily so just use a good moisturising cream.

Where in the country are you ?

Ian

Hi Boon

Thanks for the update. Thinking about it, I could only wear soft T-shirt's for a couple of months as rougher material Polo tops felt like electric shocks across the scar. I tried Bio oil on scar but it's a bit too oily so just use a good moisturising cream.

Where in the country are you ?

Ian

Hi Ian

Im near Oswestry in Shropshire

Obtained the Bio-oil and use it at night - duringt teh day I've obtained Aloe Vera gel (99%) to aid. I use soft cotton shirts-tee shirts to minimise irritation but only partially sucessful in mitigating the irritation Im surprized that the doctor doesn't have a cream to help anesitise the area.

Steven  (alias Boon)