I had my left kidney removed approximately 8 years ago.  Since then I’ve had serious pain.  

First of all I put it down to the after effects of the op (radical nephrectomy), but it never went away.  I saw my surgeon regularly but he always said everything was fine.  I could feel a swelling building up and it never goes away and it’s got worse and is excruciatingly painful when walking, etc.  Simple job of preparing a meal became unbearable.   It’s got worse over time and there’s little respite. The swelling is quite bad now, ball shaped (football!) and there’s a very tender point when side palpated.

To help with pain I have been put on 6-monthly radio frequency ablation.  It helps a little and takes the edge off.  It’s supposed to last six months but it unfortunately it does not.  It’s now 18 months since last treatment.  Hospital keeps cancelling.  I was due to have a pain blocking injection to keep me going this week.  That too has been cancelled.  

Has anyone any experience of this pain?  Any ideas to help me please?   I really can’t keep going.  My life seems over.  I can do very little.  My doctor is sympathetic but nothing on offer.  I want my life back!!!!!