I am 5 months post op, having had illeostomy reversal. I still have strange pain in my left side, although my consultant assured me there was nothing untoward going on in there. He said sometimes there is a ‘kink’ in the wall of the bowel which can sometimes stick, and I might have this pain permanently . At first toiletry problems were bhirrendous, which I expected having read various horror stories, then it began to feel a little better, however I now seem to have reverted backwards. I range from constipation one minute and then disastrous diarrhoea like explosions the next. The latter results in me not getting to the loo in time, as there is literally no warning, this can happen even after I have managed to go naturally. I’m beside myself as this is causing so many problems, I’m afraid to go out, and have experienced this whilst shopping, so am becoming a recluse. I try to use Tenna, but of course they are not designed for this problem, and don’t know what I could use, as we live n a small village, miles away from a big town, and can’t risk going out that far. My husband says I’ve ruined his life, as I’m restricting him from having a holiday or going out for a whole day. He hasn’t been supportive throughout these awful two years, and I feel very alone. I’ve tried my stoma nurse for help but she says I’m no longer under her care, although she wasn’t much help when I had the stoma, she only visited once in almost two years, when I had terrible excoriated skin around the stoma area. My GP is no help and the practice. Nurse says she can’t help either. Who do people talk to when they are having such problems. I’m at the end of my tether, I have two grown up children who have been very good but I can’t keep burdening them with my troubles, they have their own little families to care for. Any suggestions on who I could talk to? I would be very grateful for any suggestions. Many thanks for reading this and I apologise for the somewhat too graphic text.
