Hi MilosMum,

I notice that your surgery is scheduled for tomorrow and hope that it all goes well for you.

Kind regards,

Jolamine xx

Hi Fayzed,

I am sorry to hear that you are suffering with Letrozole too, but I agree with you that, despite all of these annoyances, it is still doing a valuable job and worth perservering with. I am delighted to hear that this drug has already extended your life and, I sincerely hope that it continues to do so for many more years.

Kind regards,

Jolamine xx

Helloooo !

Thanks for your message...My surgery was the 8th June....so i'm already back at work...I had a salpingo-oophorectomy ! .....Went back to work on 27th June cos really fine...like carrying hoover upstairs and sorting litter trays (which was my biggest worry)...Anyway all fine.  Had eye hospital appointment today...just out of dark glasses after having eyes dilated...Dr said my eyes are not just healthy but very healthy!...which leaves me with some element of dissapointment as I know there is a physical pulling of my right eye.

I have reports and the actual images from my MRI...the doctor there says my eyeball is visually fine on the MRI scan..I can scan back and forth through it but it means nothing to me in terms of what is abnormal...so I have to believe them. 

Hope you are doing well and keeping safe...x

Hi MilosMum,

I am sorry for my mistake, but am glad to hear that your surgery is over and done with and, that you are recovering so well.

I am glad to hear that you got a clean bill of health from the Eye Hospital today, although I can appreciate that you're still not happy, when you are aware of the pull in your right eye. Don't be afraid to get this seen to again if this pull doesn't settle down after a month or so. Could this be a squint rather than a visual problem?

Kind regards,

Jolamine xx

Hello Jolamine...

Thank you for your reply, please don't be sorry, nice of you to ask...

The eye thing is like a physical feeling of something being caught on something... really weird....I feel like if I could put scissors under my eyeball and snip it would go.... it's like when I look up the lower part of my eye is attached to something it shouldn't be... that's the best I can do for explaining...

The Dr today said he could only tell me if my eyes are good or bad... not necessarily what is causing another problem. He said I do not need to see an optician for two years.... there is nothing wrong ... this is just frustrating....but because of the MRI scan I do kind of feel better. 

Don't know where to turn with it so just gonna leave it for now. Maybe I've reached a point where this is as good as it gets... weird vision, painful left hip and left knee... general joint arthralgia... still too scared to stop the Letrozole....so I think I'll just shut up moaning and plod on.....from the things I've read I really could be in a worse situation with my prognosis.

How are you??

X

Hi MilosMum,

I am a lot better now that I am no longer taking Letrozole, although I still suffer with some of the side-effects. Still, I'm glad that I perservered with it, because I feel that I have done all that I can to keep the cancer at bay.

Like you, I feel that I could be a lot worse off and, I'm grateful to still be here 12years after my first diagnosis.

Kind regards,

Jolamine xx

Hi Treakkie,

A very warm welcome to our forum. I am sorry to hear about your symptoms. Have you had your eyes checked recently? If not, it would be worth seeing an optician in the first instance. If they feel that there is anything untoward they will refer you for further tests. I found my optician was very helpful when I started to have bother with my eyes and I was taking Letrozole. She eventually referred me to the hospital, where I had a number of eye operations. The hospital still check up on my sight regularly and, I find this very reassuring.

Please keep in touch and let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

Thank you for that advice. I have in fact got on opticians appointment next week!!

Hi Treakkie,

I am glad to hear that you already have an appointment booked and, hope that the optician can give you some answers.

Please let us know how you get on.

Kind regards,

Jolamine xx