Hi can I ask what the herceptin injection is that u have as I have zoladex once a month as I couldn't have had the letrozole as I was prw menopausal not post. I feel ur pain wen u say ur shoulders hurt as mine do to I feel like somebody heavy is permebtly satin them and it's all down my arms as well.my bones click I struggle to bend over most days and my knees especially right knee is getting so bad if it's bent for just a minot then it hurts to straighten and stand on and my left knee feels it's going same way. My hips hurt my back my bum gets cramp if I walk too much sometimes as well. My daughter tried rubbing my shoulders for me and she's no masseuse but she said I am all knotty and need sorting. I have been given codeine and naproxen from doctor and not even taken together dotvey work not even with paracetamol and ibuprofen either. I had thought of mayb buying one of those criss trainer machines but worry cuz of my knees or fact I have oestwopenia does anyone know if it wud help me 

Hi just wanted to say I have been taking letrozole at night and know its not helped I am crippled so changed to morning and still no better. Really want to come off it I'm nearly 50 and feel 80 

Hi Shazbo,

Please let us know how you get on.

Jolamine

Hi Shazbo, I took Herceptin because my cancer was her2 positive. It was my 2nd bout of breast cancer as a year after my first diagnosis they found it on my follow up mammogram!

I stopped taking Letrozole 7 months after starting it as I felt dreadful! I discussed everything with my Oncologist first though.  It was having such a detrimental effect on my quality of life that we both decided it was best for me not to take it.  

It is 2 years since my mastectomy this month and I still get pain in my breast and under my arm.  I do check in with my breast nurse whenever the worry takes over!  But after radio, chemo, herceptin and 3 ups I think its one of those things!

I take vitamin D, loratadine and turmeric with black pepper tablets each day.  The loratadine has been proven to help with bone pain after chemo and turmeric for the joints.

When my shoulders seized up the physio definitely turned things round for me so definitely push for that.  Ibuprofen also helped .

I am still a creaking gate at almost 53 but I am back teaching full time and have been since Sept 2018.  I pray every day and thank God everyday that I am where I am.

Keep going Shazby but get the help that you need.

Lots of love xx

It's only recently my breast has stopped being tender 6 yrs on!

Oh Shazbo, I'm so sorry you're going through all this at your age. I have found that 20 minutes a day on the exercise bike helps as it doesn't impact on your joints. I also do a range of physio exercises that take me about 15 minutes a day but they do help. I've started taking Omega 3 oils too along with turmeric and Accrete D3 to prevent my ostopenia developing into osteoporosis. A warm bath at night with some  epsom  salts in the water seems to help the pain a bit. I'm over 60 now but up to getting cancer was running miles and totally pain free. But I think it is almost manageable provided it doesn't get worse. Try the exercises and warm baths, I hope it helps. Best wishes

My surgery was March 2018 and  is still a bit painful but has lessened a andbit. But when I saw the consultant last week he said that it would not improve further if it's still hurting now. . But again, try doing the shoulder arm stretches that the nurse can advise on to reduce the pain under your arms. Keeping flexible helps stop the tendons tightening up. 

Best wishes

Thanks for getting back to me. My relatives are convinced that it will be so much better with warm weather but I'm pretty sure that taking Letrozole is the problem and sunshine may make general old age aches feel better but can't negate the side effects of Letrozole

I tried a hot bath Friday night and I struggled to get out of it. I am on adcal for my oesteopenia and I pray it don't turn into oesteoporosis I a sleep at night I can't get comfortable everything is a uphill struggle iv been on my own many years now and very independant but this is frustrating as I hate needing help