Letrozole

Hi I’m new to this forum.  I have had breast cancer twice, 2nd time round was in the same breast.  Because of this I decided to go for a double mastectomy to avoid a “3rd” time.  First time round I was put into Tamoxifen for 5 years, apart from the common side effect of hot flushes & mega weight gain  I felt well on then.  However, I’m now on Letrozole, have been taking them for just over 12 months and am experiencing just about every single side effect listed and more.  Recently I have been getting excessive sweating, dull like growing pain in my left leg from hip to  knee, excessive fatigue and more recently bouts of Vertigo & Tinnitus which are so debilitating I keep having to take time off work.  I’m interested to find out  if anyone else is experiencing this on Letrozole?  I also have aching joints which I can cope with, excessive itchiness all over the body, mainly at nigh but I take antihistamines for that.

With all of this going on it’s making me feel like a complete hypercondriact... is anyone else experiencing all of this and how do you cope? 

I look forwards to your comments xx

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  • Hi, if you type letrozole side effects into the search option you will find thousands of comments. I am two years post bc and having almost every side effect listed, I stopped taking it a month ago and have seen some improvements, I see my consultant in January and will discuss it then but I really don’t think I will take it again. I can’t cope anymore with the pains and bone aches and I have already tried Anastrozole with similar problems. At the moment I am all about quality of life, but that is my choice. You are not alone with your problems, people on here do understand. I researched my problems before realising it was side effects, not the other way round, and made my decision to stop taking Letrozole. No doubt the consultant will come up with something else but in the meantime I am seeing what the difference is . Hope this helps. Sue
  •  i’ve just started reading your comments today is the 18th of December 2019 I was just wondering how you are and did you go back on the medication and if you are what are you taking now I hope you are fine I hope you are okay x Gina 

  • Hi Gina, 

    I am on new medication called Aromasin or EXEMESTANE and have few side effects, nothing like the pains on Letrozole. I have a new consultant, a woman, who was very concerned I was taking nothing.  I have been taking Aromasin for a good while now and it is much better. The muscle aches and leg pains are gone. I had a few hot flushes at first but not now. My new Doctor has seen me three times and now I'm dropping back to 6 monthly. It is worth persevering with telling your Drs you are unhappy. There are other treatments available and after suffering the chemotherapy etc quality of life is everything. I was 64 when I had my cancer, I've just celebrated my 69 birthday, I feel I am back on track and able to enjoy life. Yes I'm tired sometimes but I'm here, and about to become a grandmother for the first time.

    good luck, good health, it does get better. .

    sue

Reply
  • Hi Gina, 

    I am on new medication called Aromasin or EXEMESTANE and have few side effects, nothing like the pains on Letrozole. I have a new consultant, a woman, who was very concerned I was taking nothing.  I have been taking Aromasin for a good while now and it is much better. The muscle aches and leg pains are gone. I had a few hot flushes at first but not now. My new Doctor has seen me three times and now I'm dropping back to 6 monthly. It is worth persevering with telling your Drs you are unhappy. There are other treatments available and after suffering the chemotherapy etc quality of life is everything. I was 64 when I had my cancer, I've just celebrated my 69 birthday, I feel I am back on track and able to enjoy life. Yes I'm tired sometimes but I'm here, and about to become a grandmother for the first time.

    good luck, good health, it does get better. .

    sue

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