Letrozole

Hi I’m new to this forum.  I have had breast cancer twice, 2nd time round was in the same breast.  Because of this I decided to go for a double mastectomy to avoid a “3rd” time.  First time round I was put into Tamoxifen for 5 years, apart from the common side effect of hot flushes & mega weight gain  I felt well on then.  However, I’m now on Letrozole, have been taking them for just over 12 months and am experiencing just about every single side effect listed and more.  Recently I have been getting excessive sweating, dull like growing pain in my left leg from hip to  knee, excessive fatigue and more recently bouts of Vertigo & Tinnitus which are so debilitating I keep having to take time off work.  I’m interested to find out  if anyone else is experiencing this on Letrozole?  I also have aching joints which I can cope with, excessive itchiness all over the body, mainly at nigh but I take antihistamines for that.

With all of this going on it’s making me feel like a complete hypercondriact... is anyone else experiencing all of this and how do you cope? 

I look forwards to your comments xx

Parents
  • glad I read this. I have been on anastrozole 3 years and complained of joint pain. Was given a month rest then put on letrozole. Oh my god been on it a month and I just want to lie down and die cannot take this pain any longer day and night. Constant headache shoulders hips knees feet hands. And I have a good pain threshold. Not taking it again 

  •  

    Hi Jenny,

    Welcome to the forum.

    I'm sorry to hear of the problems that you've been having with Letrozole. Have a word with your care team before stopping it altogether. There are other medications that you could take instead.

    Please let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

Reply
  •  

    Hi Jenny,

    Welcome to the forum.

    I'm sorry to hear of the problems that you've been having with Letrozole. Have a word with your care team before stopping it altogether. There are other medications that you could take instead.

    Please let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

Children
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