Remission 9 years

Hi everyone! This  is my first time on anything like this so I'm not really sure where to start. I am a 29 year old who is just over 9 years in remission from hodgkins lymphoma.

Ive been battling a lot lately with an issue which seems to have been on going since my diagnosis and in fact prior to diagnosis where i have occasional bouts of nausea and vomiting. There does not seem to be anything in particular that brings this on as it's random and can come on at anytime. I used to think it was related to alcohol as when i seemed to drink even the slightest amount this would happen but have been able to rule this out over the years by cutting it out to see if the problem resolved.

Before i could cope with this issue as when i would feel sick I removed myself from the situation and went for a lie dowm until it settled but now being in a relationship the problem has came to a big head. I can no longer just go home or lie down as I have my partner to think of and as this happens very occasionally I hate the thought of ruining his night as well as my own as when i  like that all i want to do is lie down. I dont seen seem to have any control over the situation and there's times when im absolutely fine but more often that not I end up being sick. On top of this I have unbelievable fatigue, i am constantly yawning and if given the opportunity would nap during the day. Its been nearly ten years since I had chemo (ABVD) and just wondered if anyone else has experienced anything similar.

It's frustrating because it brings me back to the days prior to being diagnosed when no one knew what was wrong with me and were putting my symptoms down to something else other than my Hodgkins. I feel like I'm at a same loss no one knows why this has been happening and it's really starting to effect my life as I have no control over it.

I must point out that i still attend 6monthly check ups with my consultant and had my last pet scan in 2013. I dont think my cancer has returned and I am happy with my monitoring though i do worry that with this sickness i might miss any symptoms that may mean a relapse. 

I look forward to hearing from anyone who might experience something similar.

Thanks for reading 

Martina xx

  • Welcome to our forum Martina,

    I'm sorry to hear you are experiencing all these issues and I can understand why they bring back the memories of the time before your diagnosis. On the other hand, I'm glad to hear you are over nine years in remission and going for your regular check-ups.

    Have you contacted your consultant about your concerns recently? If you haven't done that yet perhaps it is a good idea to do so on your next opportunity as they may be able to shed some light on the situation and what is causing you to feel this poorly.

    Also, if you'd like to ask the opinion of our cancer nurses, they are available on this telephone number, (which is free to call from a UK landline) 0808 800 4040, Monday - Friday between 9 a.m - 5 p.m.

    Stay strong Martina.

    Wishing you all the best,

    Renata, Cancer Chat Moderator

     

     

  • Thanks Renata! 

    Yes I think I'm going to go back to my GP regarding this issue as I have been seeing her about it and was seeing a mental health nurse as well though there seem to be no mental health triggers as such. 

    I will be due a review with my consultant within the next few months so will bring it up at this also.  

    Thanks again 

    Martina xx

  • Hi Martina

    I am 3 years in remission with acute myeloid leukaemia. I still attend 6 monthly checkups and at each one I explain that my fatigue seems to be getting worse and I to could sleep during the day. I have had blood tests and have been told I have a very high iron content (caused by a large number of blood transfusions) because of the fatigue I am left most days feeling down and depressed which is hard to explain as you try and carry on a normal life. It's helpful to know it's not uncommon.

    Linda