I lost my Partner seven weeks and 2 days after he had been diagnosed with Hepatocellular Carcinoma in January 2017. He had undergone a liver transplant at the end of April 2016 which, we were told, had gone well. I still don't know how this happened, and I can say that it was utterly soul destroying. I am not only suffering in the way so many others do who have lost loved ones, but have the added misery of the shock of "going into reverse gear" after driving forward after the transplant, so to speak, as well as not knowing where this came from and why his regular monitoring did show up any issue of concern. I tried desperately to get him back before his consultant because I was concerned about what appeared to be a tummy upset, and got knowhere and failed completely ... hence I had to resort to taking him to A & E where he was admitted and then diagnosed.
So I can honestly say that it has been my misfortune to join the club for those "who have found themselves thinking that all was going well, except it wasn't".
I come here hoping to see some really exciting news one day, that we have managed to find the way ensuring that we track down and destroy those rogue cells which, having managed to escape and get into the lymph or blood, are so often responsible the cry "its back".
Not only am I disappointed every time I look in, but I get quite distressed at the number of cases where the cry "its back" is to be heard. It seems to be getting stronger and stronger.
I know that great progress is being made in the development of treatments available, but in so many cases the extent of success is measured in terms of remission rather cure, and I find myself thinking we should, on a worldwide basis, be resourcing research in a more directed and determined way into the area which is in very great need of success - the detection and control of rogue cells and the processes which which allow rogue cells to hide and then develop agressively.
I wish ... I wish!