I have been on Tamoxifen now for just under 5 years. I started with really bad nausea but this stopped when I started taking the tablet at night thankfully. I was attending SW as I was concious to have a good diet to help me recover from the cancer and radiotherapy and couldn't understand why I was putting weight on. My diet was brilliant and I was walking in the mountains at weekends and lower level walks every evening after tea. I spoke to the consultant about my concerns as was told to join a slimming club or something! Not at all helpful and I sat there in tears saying I was already in a club. That appointment was 2 years ago and I know look  like I'm 9 months pregnant! I have been having blood tests on and off now for 12 months and I have had to beg the doctor to send me for an ultrasound to check all is ok as my mum died of endometrial cancer and my dad died of a brain tumour. I have the appointment tomorrow and part of me wants there to be a medical reason for this weight gain of nearly 4 stone in 5 years. I now struggle to go for lengthy walks on the flat as my breathing is so bad I have to keep an inhaler to hand. Reading the posts on this forum gives me a little comfort that I am not alone and not as my partner thinks OVER EATING 

Hi everyone,

I am new to this. In fact I don't really use any social media. 
 

I started taking tamoxifen in August this year. I was diagnosed with stage 2 breast cancer; had 3 active lymph nodes; a mastectomy; chemotherapy and then radiotherapy which ended in early September. 7.5 months of highs and lows but it was worth it to feel well again. 

I feel so much better than I did before my diagnosis. I do get side effects from tamoxifen - achy joints, hot flushes, feel a bit frustrated occasionally - but I take the view that it's stopping my cancer from coming back. I'm only 50, have 3 children, a lovely husband, a very rewarding and demanding job - cancer was a real inconvenience and a challenge. I would never let it defeat me. I stay positive ahd enjoy every day (i have taken to reading a lot when I can't sleep at night). 
 

I have found that long dog walks in the fresh air help, along with a healthy diet and no alcohol. I really do feel well.

I am so sorry to read how much other people are suffering with side effects. I think I might have been lucky.

EXB 

Hi, Not sure if you will get this but I'm just reading your message as I'm in the exact dialema. I noticed you posted your oringial post in 2016 and wondered what your descion was - hope you don't mind me asking. I had a lump and nodes removed but feel the exact same way as you and even cried when I read your post. How are you feeling now?

Hi.. I was looking back at the posts too and can definitely relate..I started tamoxifen in January after chemo and radiation..Since taking it i feel like a shell of myself..Restless legs hot flashes low mood agitated just feeling like *** really..I met with my oncologist today and we decided that i will stop taking it for 2 months to see of if my mood and general feeling of *** leaves...I'm back in November to see how i am and if i will go back on it

Hey SammySue, how are you feeling now ? 
I recently took a break from tamoxifen and felt great but had to start Letrozole on 3 Aug which I think are just starting to kick in as now feeling aches in joints and low again. This sucks but I guess the alternative sucks more. I think I need to keep reminding myself of that but it is hard to do so.