Hi, thanks for your reply.  It sounds as if you're  still in remission which is great after 4 years.  Unfortunately I didn't get the maintainence drug in the trial and its doubling remission periods.  I think that's part of my worry because on average it's two years remission and I'll be up against that very soon. 

Im sorry to hear you're having such a tough time of it.  Although I did have a rough time during transplant and for a while after I've not had the problems you're experiencing.  

I used to be a big trainer, run 7/8 miles 3/4 times per week plus long walks and some weights until a few years ago and was really hoping that I could get back to that but really struggling with it.  I'm still very weak and tired although I have recently returned to working full time in the office instead of shorter hours at home.  So I suppose I am going on the right direction.

do you worry about the myeloma returning?

Hey i hope your ok