Feeling low

Hi just reading how you are all feeling helps a little I'm 2. Years post surgery , chemo and RT I'm on tomoxifen and venlofaxine but I'm very low bones and joints all ache

all the time very tired , people think just cause you've finished treatment your ok but I'm certainly not the person I was , is any one else like me 

  • Hi,

    Its often the case that side effects carry on way after the treatment has finnished. As you so rightly say people dont realize that cancer patients are affected not only by side effetcs but by tirednees amd emotional highs and lows way after treatment has finnished. Even if you have been given the all clear, you still have worries about it returning and life has been changed forever. Luckily for me, It has changed me as a person and for the better for I look at life differntly now and am much more appreciative of the simple little things in life. Hope you soon feel better. Kind thoughts being sent your way, Brian.

  • I finished chemo/ radiotherapy 4 months ago and I've certainly found that people think that once you've finished treatment your fine , that's certainly not the case. My joint and bones ache constantly sometimes so much so it keeps me awake
  • Hi, I'm nearly two years post chemo and like you i am on tamoxifen and venlafaxine. I do get tired and people wander why after so long but you know ur body, don't push yourself. You will never be the same person but you now are a stronger and more appreciative person. After what we have been through you realise life is to be lived do what makes you happy. If the bone pain persists speak to your doctor. Stay strong X

  • I am so tired all the time. Its been 4 months since my RT and 3 months since surgery. My house is still a mess i never get ontop of it. The dog wears me out ! but i love him to death, sometimes im sure He might pull me over down the park i feel so weak.

    All my friends say to me you look sooooo well. Im like yea have you seen me with no makeup?  its almost like if you look good one day make up hair etc then you cant possibly be still suffering from the effects of cancer, fatigue, sleeping problems, digestive problems, hot flushes, fear of it coming back to  name a few all because " you look sooo well" so therefor its assumed you are coping and you have " moved on!" its not like a marriage ending or a relationship where you can " move on" and start afresh maybe thats just me and where i am atm as its still within 6 months of my year from hell.

    I think the weather don't help Sherlyn. Im sure we all felt a bit better when the sun was out. I sadly put my parasol away today in the shed it was a very emotional moment for me lol.

    Your are not alone, your feelings are normal in our world.

    Suzie x

  • I agree Fullalove, Its been 4 weeks since my RT ended and i even missed out on my much needed holiday with my mum and kids because my sister would not wait for me to recover and when i said about 4 weeks after she was like well it says 4 weeks on the book/online or where ever she seen it and I could not committ to a date for a holiday even though my mum and i planned it all the way throu the treatment and it was something to look forward to. In the end my sister got bored of waiting for me to book somewhere and next thing i know shes booked for her and my mum to go abroad to Egypt. I was really disapointed in my mum that she choise to go with my sister rather than wait for me to get more well. Guess what mum don't want to go again now so soon in NOV! and even planning Jan feb shes already told me shes agreed to watch over & take care of these old folks she cleans for whilst their adult family go abroad on their holiday! and Im like hello mum ?? what about me ? I need a holiday......

    My joints atm are ok! but my knee popped out last week and that was pretty bad could barly walk but to be honest ive had it happen before other leg before B/c and before I started Tamoxifen.

    I feel ready for the knackers yard at 45 !

     

    Suzie x