Hi everyone.

Hi all. I have been six years clear of Base of Tongue Cancer. I had a lot of Chemotherapy @ six weeks of Radiotherapy. To be honest I can't remember a lot apart from the awfull pain in my throat. In the last three years I have had terrible pain in the muscle in my neck the side I had the treatment. I have been thrown so many drugs to combat this but nothing seems to work, or I'm not sure if I'm just paranoid. The drugs I have been given are, Tegratol, Chlomazepam, and Gabapentin, the thing is I've looked them up and they are all the same sort of drug. Has anyone out there come up against the same problems. I'm at my wits end, the doctors don't seem to want to know, I feel like I'm being a pain if I keep mentioning it, I've even thought about suicide. Which seems awfully ungrateful of me as I have had my life saved. But sometimes coping with the pain is too much. I have a wonderfull life but I am unable to enjoy it because of this problem, sorry to go on but  I've had enough. 

  • Hi Casperpony!

    I am so sorry to read that you're feeling this way. Please make sure you talk to someone about how you're feeling, especially if you're feeling suicidal. 

    I don't think you're paranoid and I think you're absolutely right to demand someone looks for the cause of your pain and not just at easing it. It can be hard sometimes because you DO end up feeling like you're being a bit of a pain... I was convinced the mole on my back was a problem and it took a lot of insistence to get someone to listen to me. By the time they did, the melanoma had spread to my lymph nodes. Keep insisting and hopefully you'll find someone like my consultant who took the time to really listen to me.

    Please don't give up. I'm not in your situation pain wise so I can't really sympathise but I see you said you have a "wonderful life"... I don't know you but I get the feeling that there are many people whose life would be less wonderful if you were missing.

    We're rooting for you and always someone around if you need a chat xx

  • Aaahh thank you so much. Yes I went to see my doctor three times about the lump in my throat, three months later he referred me to ENT after I insisted something wasn't right. It was T3 by the time I got to see them.i just feel they help get rid of the Cancer which I am very grateful with, I don't want to complain about that. I just feel there is no one to turn to about the long term affects, all they kept telling me is its normal after Radiotherapy. Well that maybe so but I don't think being in pain from the time you go to bed to the time you get up. I am seeing my doctor next week I will definitely talk to her. Thank you for your reply, maybe I can finally get somewhere. Xxxx