hi I had breast cancer 2 years ago and had all my lymph nodes removed I also had chemo, radio and a lumpectomy this left we with lymphoedema in my arm (I know completely different to what you have) I've got a fantastic lympoedema nurse where I go every 6/7 weeks where she massages the area for ablout 45 mins it feels lovely afterwards yes the fluid does build back up but she also gives advice on how to help keep it down I also wear a sleeve on my arm which also helps. I also go swimming and still do the small exercises I was told to do after the op. if you don't already go to a lymphoedema clinic a suggest you go to see your doctor and ask to be referred. hope this helps a little take care :)