When does it get better?

I was diagnosed in December 2024 and am just starting radiotherapy after surgery after  8 rounds of chemotherapy. I have days when I feel like I'm running on empty and can't see where this ends. I have ongoing joint and muscle pain and struggle to exercise. I don't recognise myself in the mirror and hate how I look. Some days I just don't see the point. Not sure what I'm looking for here but ...... 

  • Hi Spenno

    You've been through a punishing regime of treatment. And now the last phase, radiotherapy. You are nearly there so dont give up now. This is the lowest point, having no energy, pain and suffering with depression as your body tries to recover. A week or so after your last radiotherapy session you will start feeling a bit better and will continue to do so over the following months. If think you came here looking for support. if your hospital has any support services take advantage and use them. If you were assigned a Macmillan nurse contact them. You can chat to the nurses on the phone here too. 

    Ed

  • Hello Spenno,

                            your looking for the reassurance that all the pain, misery and half existence you have endured will have been worth it. The good news is that it can be, the worse news is that it will take a lot more effort from you to make that happen. You are likely at the point where you have realised that you are not going to wake up one morning, or flick a light switch on and hey presto normality returns.

    l well remember where dragging my feet across 200 metres of hospital pavements to be able to collapse onto a bed in the accommodation block after 5 minutes of radio was akin to climbing Everest with a bag of cement tied to both ankles.

    That set the tone for my recovery, effort and collapse, get back up, effort and collapse, and repeat constantly. During this recuperation, l tended my sheep and cattle, and built a retirement house, the key being motivation, the frustration being my mind always setting targets beyond my then current abilities, the aspirations being able to climb that bloody Mountain once more

    It comes to those who are prepared to make it a reality, it comes hard,  it comes slowly, it comes hardly noticeable week on week, month on month, then one day much further down the road you suddenly give yourself a break from that never ending slog of grinding forward and realise the distance you have travelled from despair to a future where all things are possible once more

    Ten years on from stage 4 bowel and liver resections,chemo radio pre surgery, chemo post surgery, stoma reversal l look back on a hard road travelled, a newlife unfolded and the joy of discovery in what lies ahead

    Was it worth the effort in the dark days, l will leave you to decide.

    Best wishes for your journey,

    David

  • David you could not describe that period of despair any better. It takes a lot of resolve to get through it. I did so 11 years ago major surgery radiotherapy to neck throat etc. during which time a bad investment lost me most of my money. I was in the pit of despair. A year recovering and I have had a good 10 years life since. Hard physical work farming long hours. Great holidays, got married, seen my grandchildren arrive. Sadly the cancer is back with no cure but good palliative care with immunotherapy. I'm still enjoying life to the utmost of my ability. I hope that Spenno will share our good fortune.

    Ed

  • Hi Sperno 

    Its quite natural to feel as you do while going through cancer treatments,its a tough regime. 

    Instead of beating yourself up when you look in the mirror, you should be looking at yourself with a different way of thinking ,you should be congrating yourself on just how far you've come,your amazing you really are ,just as all us cancer warriors are, we never expected  to be diognosed with cancer it, and its tough at times,we all have days feeling like you do,but we pick ourselves up dust ourselves down,and get on with it,we have no other choice if we value our lives. Try to have a day just for you, doing things that you find interesting, calming ,fun,that diesnt expert you . Watching a good film ,going to the cinema with a friend, a bit of shopping  treat yourself to something new,  go fir a nice meal ( if you get the energy) if not order a takeaway away . Anything really that is going to.make you feel a bit better.

    Each day of treatments,is getting you nearer to the finishing line,where you will be able to ring that bell,if your hospital has one,mine did I rang the bell ,and it felt so good. You will get there,and you will start to see  you in the mirror  again.  Always here if you need a chat or let of steam .x

  • Thank you David - you sound like an amazing person

  • Thank you ️ on better days I can see this but some days are just too hard and my post was one such period. I think the roller coaster is the hardest as just when I feel I'm getting somewhere, it hits again and I have no energy, desperate thoughts about the future and simply "what's the point". Thank you for taking the time to respond to me. Very grateful  

  • Hello Spenno,

    you are right about the amazing but thats not me, l was just fortunate to be the recipient of lots of personal efforts from those that supported me along my journey, The medical staff that mentally have to deal with the despair of failiure but somehow manage to pick themselves up to work towards their next success---they are amazing

    Your partner in life who goes through the unrelenting constant anguish of seeing the one they care about suffer,but unlike them cannot let their inner doubts and terror overcome their outward positivity or support, doing so without the benefit of the of all the external support that you as the patient enjoy----they are amazing

    The support staff  that prop you up along your journey, and by the very nature of doing so become close to the disapointments of losing some, and yet still keep giving of themselves to the next stranger that staggers forward in need of their help----they are amazing

    Those that are involved behind the day to day cancer warfare seeking out new treatments to better the lives of those succumbing as a casulty of this disease,--- their diligence in doing so is amazing

    As for me and all those who have fallen victim of this horrid affliction, we are just the unfortunates that were given no choice, but become the fortunate beneficiaries of all the amazing set out above.

    So when we say a recovered patient is amazing, we are really giving all the credit to the so many that made our journey to a successful outcome possible.And finally a big thank you to those involved in this site, those running it, those contributing to it, and giving voice to every post,to each and every one---THANK YOU