Hi, I am 8 years in remission from non hodgkin lymphoma. I had 3 different lines of chemo with immunotherapy, a stem cell transplant, and radiotherapy. I seemed to have been doing fine for 6 years, but now I've started to experience late effects. In particular peripheral neuropathy and autonomic neuropathy, I have dizzy/faint spells often and tingling in my hands and feet. My joints aren't doing too well either, I get stiffness and intense pain my arms, legs and hips every single day. It feels frustrating as I'm only 32 years old, was 24 when I went through cancer. I'm wondering if this is common, something to be expected? Any long term survivors here experiencing late effects? It's so hard not to worry about the future, how I will continue working, if it will affect me looking after my two kids, and if any of this will get worse as I get older.
