Feeling fatigued and low

Last July I was diagnosed with stage Ia grade II endometrial adenocarcinoma.  I had a total hysterectomy with bilateral salpingectomy and oophorectomy

from which I seemed to make good recovery but never got my normal energy levels back.  In the November at my follow up appointment I was

advised to have 25 abdominal radiotherapy treatments which would reduce chances of recurrence as there was a high level of lympho-vascular invasion. 

The radiotherapy itself I found ok but the stress of the daily visits and prep took its toll and I had delightful side effects with my bladder and bowels which

I am grateful mostly settled down afterwards.  Fortunately it had little effect on my skin in that area other than a feeling like sunburn and some itching.

My main side effect has been fatigue, overwhelm  and feeling anxious and depressed which is still affecting me some 11 weeks later.  Household tasks

seem like a marathon and I really have to pace myself or I end up feeling like i'll collapse and sometimes just the thought of doing things can make me

feel overwhelmed.  I have put on weight too due to comfort overeating and not being able to exercise enough.  I also haven't had the 6 week check up but

instead, after chasing, it is next week, 12 weeks after the end of my treatment, which has put me on edge.  I feel so much worse than before my

diagnosis, operation and radiotherapy. I am just wondering if there is anyone out there has felt a similar way and if things have improved or any advice?

Sorry if I'm rambling on.

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  • Hi Kayem66

    Its good to reach out and connect. Fatigue is a major side effect of a lot of treatments so you are not alone.

    As frustrating as it is its your bodies way of saying hey we need some time to rest and recuperate. Pacing is the way to go. Stop before that horrible drop hits sit and rest then if you find you have energy do a little more.

    But make sure you do nice things too...wash dishes or chat to a friend .....which makes you feel better?.

    Things will improve. Also get your team to check your iron and b12 levels as lots of treatments cause anaemia and these cause fatigue too but can be treated and improve things for you 

    Also can you access support with house stuff? Even once a fortnight might help.... 

    And maybe a counsellor its a lot to deal with.

    I hope some of this helps a little bit 

    Sorry bit disjointed 

    Sending kindest wishes RB

  • Thanks for your helpful response.  Bloods have all been fine.  I've been trying to do a bit of light gardening while the weathers good and just for short

    periods.  Its just always surprising how it can catch me out  I am currently trying to access some appropriate counselling.  Thanks again

  • Hi Kayem66

    You are very welcome gardening /fresh air sounds good :-) 

    Do mention how fatigue s affecting you at your appointment / blood results sometimes the "numbers" say in normal range  but symptoms are impactful.....everyone is different ...

    Top tips on pacing can be found on any good site for ME/CFS different reason for the fatigue but the strategies are very helpful

    Good luck with the counselling Art Therapy is good ,( no you dont need to be able to draw like Rembrandt!) 

    Best wishes RB  

  • Hi Kaye,

    Do you live near a Maggies' Centre? They offer free counselling and I found them extremely helpful.

    Kind regards,

    Jolamine xx

  • Sorry my reply is late but thanks for supportive message.  Have had my follow up appointment with a scan to follow.  

    My radiologist said fatigue  could last up to 12 months.  havn't had a chance yet but will have a look at me/cfs sites.

    I find that the follow up concentrates very much on the physical and not the psychological.

    have had success doing some 'paced' gardening while the weather 's been good.  

    Thanks again.

  • Unfortunately not although I have read about them online.  Thanks

  • You are welcome and welldone on pacing

    and no neec to apologise its part of life with chrinic for whatever teason you have it fatigue 

    Keep being kind to yourself 

  • Hi Kaye,

    That's a pity. There are other cancer charities which are local to individual areas, which offer a similar service. They come under different names. Ask your practice nurse, GP, or members of your care team at the hospital.

    Kind regards,

    Jolamine xx

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