Letrozole - is anyone else struggling to get their preferred brand?

I wonder why this chat has gone quiet - there must be many of us struggling with Letrozole and getting different brands every month.  Is there nothing that can be done to ensure people get the brands that suit them? Month after month I trail around the pharmacies in my area and am generally offered Sun or Accord, neither of which I can take.    Sun made me feel very unwell and I couldn’t stay awake, Accord was worse and I had chest pain, breathlessness and swollen legs.  Crescent is wonderful and I don’t know I’m taking it - but it’s almost impossible to source.  Pharmacies generally seem fairly unhelpful, but I guess it’s because they have no control over what is sent to them.  Could it be possible for a central register to be created so users could know what brands are available where at any given time, or is that a pie in the sky idea?

  • Hi Romilly and welcome to Cancer Chat.

    I'm sorry to hear of the difficulties you're having getting your preferred brand of Letrozole. This must be incredibly frustrating, especially when you're unable to take the other brands.

    I'm sure there have been discussions about this on the forum before, so you are not alone Romilly, and hopefully some of our members who have encountered similar issues will be along soon to share their experiences and advice.

    If you'd like to discuss this situation further with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very well informed and will do all that they can to help.

    Kind regards,

    Steph, Cancer Chat Moderator