Hi everyone
i am 31 with 4 children and for the last 4 months have been having the RCODOXM/RIVAC chemotherapy regime for burkitts lymphoma which was in my uterus.
yesterday I was told my PET scan results and was shocked when she had said it’s all gone. It’s been absolute hell over since June and turned all of our lives upside down, I only had my 4th child in January and a few months later was diagnosed with the cancer. I was only able to go home twice whilst having treatment. It’s been rough. My liver is still a bit toxic from the treatment and the blood tests are iffy, they’ve reduced some of my medication I’m on at home.
it feels weird to just be “let free” - I’m not sure how I’m coping really. I had a restless night sleep. The worry doesn’t just go away unfortunately.
I am still neutropenic, anyone who has had NHL will know what this is like. They won’t give me any more GCSF because my bone marrow needs to start pumping out the white blood cells itself but it’s very sluggish. I don’t go back to hospital for another 5 weeks, where I will discuss getting a hysterectomy to remove my uterus completely (which I will be happy about).
Weirdly I feel like if I’m not grateful about life now my cancer is going to come back, I’m trying to not stress about everything and just be grateful for the amazing news (which it is) but I just can’t help worry about everything after all I’ve been through.
I guess I just wanted to put my thoughts somewhere.
thank you for listening and I hope everyone is doing well in their journey and recovery.