Exemestane

Hello again and hope everyone is doing well. I had my mastectomy and immediate reconstruction 9 weeks ago and doing well. Had breast cancer in other breast 5 years ago with lumpectomy, radiotherapy and Anastrazole/Letrozole which gave me aches and joint pains. Have been taking exemestane for about 3 weeks now and feeling quite rough. Bad joint pains, tired all the time, headaches, reflux, indigestion and generally feeling off it. Has anyone else had these symptoms and does it get better? 

Will ring Macmillan nurse next week for a chat as it is having a significant effect on my day to day life.

Best wishes

Mary 

  • Hi Mary,

    I wanted to send a reply to your post to give it a little boost, so a few more people should see it and hopefully you'll get some more replies.

    It's good to read that you are doing well, although I'm sorry to hear of the difficulties you're experiencing also.

    Much of what you have listed does seem to be potential side effects of Exemestane.

    Ringing the nurse for a chat sounds like a good idea and a good first step to talk things through - hopefully this will be helpful, and you can always have a further discussion with your doctor.

    I hope that things ease a little for you soon.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator

  • Hi Ben

    Thanks for your helpful reply. Hopefully may get some feedback from others who are experiencing similar symptoms to me.

    Have a good Bank Holiday

    Best wishes

    Mary 

  • Hi Mary,

    I am glad to hear that your surgery is now behind you and hope that you are recuperating well. I am sorry to hear about how the Exemestrane is affecting you. If you put this in the search box, I'm sure that you will find that you are not alone with these symptoms. Here's hoping that someone can offer you some useful suggestions.

    Kind regards,

    Jolamine xx

  • Hi Jolamine

    Lovely to hear from you. I spoke to the Macmillan nurse as was feeling so bad with side effects. We agreed I could take a 4 week break then see my Consultant to discuss things. Stopped medication about 2 weeks ago but still feel very stiff in the joints. I am in Venice at the moment having a relaxing holiday.

    Will let you know what the Consultant says on the 19th.

    Best wishes

    Mary xx

  • Hi Mary,

    It's good to hear that you spoke to the Macmillan nurse and decided to stop taking the Exemestrane, until you see your Consultant on 19th. I hope that you are enjoying your trip to Venice and that the heat is helping some of your aches and pains.

    Please keep in touch and let us know how you get on.

    Kind regards,

    Jolamine xx