Treatment finished, clear of disease, what next?

Hello all 

I was diagnosed with Stage 2 Grade 2 DCIS in Dec 2022. All of 2023 and beginning of 2024 was spent in treatment. I’m on hormone therapy for the next 5 years.  I’ve been told I am free of disease, but I’m really struggling to move forward. 

Every twinge, itch, rash etc, I immediately start thinking the worst. I keep thinking “what if” it’s coming back? I’m sick and tired of being sick and tired. I’m fed up of the constant worry, the thought that it will be back and everything I’ve been through is pointless - I’m going to die from it anyway.  It’s exhausting. 

I’ve had lots of counselling already, also tired of this. I want to move forward, but I can’t see a way how. Has anyone else felt like this, and how did you start “living” again please? 

Parents
  • That’s a really hard question to answer. 
    I was given a very bleak prognosis at stage 4 and put onto palliative care. I “settled my affairs” and even put together a play list for my wake. Then, a bit like Wilko Johnson, my oncologist was surprised that, despite all treatment ending a year earlier, my cancers were still shrinking 6 months after my expiry date and again at 12 and 18 months. Seven years later my CT scan showed no visible sign of cancer.
    That really messes with your mind. 

    Keeping busy helps - I’m not a religious person but some people find comfort there. Long walks with my dog helped a lot, as did starting s new career to supplement my early retirement pension and to keep my mind distracted. Chatting with peers on here really helped too, as did anti-depressants for a couple of years. 

    It feels very much like the grieving process. Shock, denial, anger, bargaining, depression and acceptance. I’m finally at a stage where I’m glad to be alive and well, but accepting of the belief that sooner or later my cancer will return. 

    I do hope you find your way through this.

    Good luck
    Dave

  • You would have no idea just how much I enjoyed reading your post.

    I have been told I am a miracle. You must be too :-)

  • Wow…. you’re both living proof that miracles happen!

    All my best wishes to you both

    X

  • Thank you.
    Some people have said that - I think “a statistical outlier” sounds far cooler in my nerdy World lol 

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