Treatment finished, clear of disease, what next?

Hello all 

I was diagnosed with Stage 2 Grade 2 DCIS in Dec 2022. All of 2023 and beginning of 2024 was spent in treatment. I’m on hormone therapy for the next 5 years.  I’ve been told I am free of disease, but I’m really struggling to move forward. 

Every twinge, itch, rash etc, I immediately start thinking the worst. I keep thinking “what if” it’s coming back? I’m sick and tired of being sick and tired. I’m fed up of the constant worry, the thought that it will be back and everything I’ve been through is pointless - I’m going to die from it anyway.  It’s exhausting. 

I’ve had lots of counselling already, also tired of this. I want to move forward, but I can’t see a way how. Has anyone else felt like this, and how did you start “living” again please? 

Parents
  • Hello My boobs

    I am in a similar situation to yours, on exemestane for the next 5-10 years and feeling ***.  Have been referred to mental health clinic for a review of my meds as am already at top dose of sertraline, there has to be something I can take to stabilize my mood, I miss my hrt lol.  Counseling only goes so far but I have got referrals to MH clinic, physio and tier 3 weight management so am waiting to hear from them.  Pain management is a nuisance but necessary, I have to accept that paracetamol and ibuprofen are part of my daily life now, I have joined a local spa and try to swim 3 or 4 times a week and do Pilates class once a week.  It is difficult to keep motivated but the movement does help, particularly in the water.  I started getting my nails done with biab stuff as they were so *** after chemo, never had them done by a professional before but now go every 3 weeks.  I might feel *** but my nails look pretty and I can see them and it gives me a lift.  My hair is still very short and thin and I hate mirrors but try to give myself a scalp massage with rosemary oil at least once a week.  Light smelly candles, go to a sound bath, anything that gives you joy.  Accepting that I won't go back to my old "normal" whilst on these awful meds is very much a work in progress but I am fighting to get there.  I too, am fed up of feeling sick and tired, fed up of fighting, exhausted by the act of staying alive, I try to remember that a chemical imbalance is the enemy here, this too shall pass.  You are not alone babe, you are not going nuts, this is the unseen, hidden part of your recovery xx

    Hugs  

Reply
  • Hello My boobs

    I am in a similar situation to yours, on exemestane for the next 5-10 years and feeling ***.  Have been referred to mental health clinic for a review of my meds as am already at top dose of sertraline, there has to be something I can take to stabilize my mood, I miss my hrt lol.  Counseling only goes so far but I have got referrals to MH clinic, physio and tier 3 weight management so am waiting to hear from them.  Pain management is a nuisance but necessary, I have to accept that paracetamol and ibuprofen are part of my daily life now, I have joined a local spa and try to swim 3 or 4 times a week and do Pilates class once a week.  It is difficult to keep motivated but the movement does help, particularly in the water.  I started getting my nails done with biab stuff as they were so *** after chemo, never had them done by a professional before but now go every 3 weeks.  I might feel *** but my nails look pretty and I can see them and it gives me a lift.  My hair is still very short and thin and I hate mirrors but try to give myself a scalp massage with rosemary oil at least once a week.  Light smelly candles, go to a sound bath, anything that gives you joy.  Accepting that I won't go back to my old "normal" whilst on these awful meds is very much a work in progress but I am fighting to get there.  I too, am fed up of feeling sick and tired, fed up of fighting, exhausted by the act of staying alive, I try to remember that a chemical imbalance is the enemy here, this too shall pass.  You are not alone babe, you are not going nuts, this is the unseen, hidden part of your recovery xx

    Hugs  

Children
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