Hello Queens61, I’ve just rejoined this site after an absence of a few years.  I’ve just started researching the after-effects of tamoxifen and saw your post.  

I was put on it for 5 years after having a lumpectomy and radiotherapy in 2019 but I actually only did 4.5 years as it turned out I was one of the unlucky ones that tamoxifen increased my chances of endometrial cancer so in November 2023 I had a total hysterectomy to get shot of that. Sadly some of the cells escaped from the tumour in my uterus and set up residence elsewhere so I have completed chemo and radiotherapy at the end of May this year.

Anyway … I stopped the tamoxifen in February this year, thinking that my side-effects (which were many and varied but gradually lessening the longer I was on it) would stop.  Instead I find that I’m even MORE full of aches and pains than I was on it. I spoke to my gynae consultant last week about the joint pains even though I knew it wasn’t his department but I thought he might be able to advise me what to do, ie see GP, maybe get bloods done, etc.

He wants me to wait until after my next MRI and CT scans, not sure why, but I’ll be interested to discuss at next follow up appointment. 

Anyway, not sure why I’m telling you all this, I’m just interested to read about others experiences. 

Hello Queens61, I’ve just rejoined this site after an absence of a few years.  I’ve just started researching the after-effects of tamoxifen and saw your post.  

I was put on it for 5 years after having a lumpectomy and radiotherapy in 2019 but I actually only did 4.5 years as it turned out I was one of the unlucky ones that tamoxifen increased my chances of endometrial cancer so in November 2023 I had a total hysterectomy to get shot of that. Sadly some of the cells escaped from the tumour in my uterus and set up residence elsewhere so I have completed chemo and radiotherapy at the end of May this year.

Anyway … I stopped the tamoxifen in February this year, thinking that my side-effects (which were many and varied but gradually lessening the longer I was on it) would stop.  Instead I find that I’m even MORE full of aches and pains than I was on it. I spoke to my gynae consultant last week about the joint pains even though I knew it wasn’t his department but I thought he might be able to advise me what to do, ie see GP, maybe get bloods done, etc.

He wants me to wait until after my next MRI and CT scans, not sure why, but I’ll be interested to discuss at next follow up appointment. 

Anyway, not sure why I’m telling you all this, I’m just interested to read about others experiences.