What is remission? When does it start?

Hello, 

I was diagnosed with cervical cancer stage 3C2. 

Iv had 25 rounds of radio, 5 rounds of chemo, 3 rounds of brachytherapy.

Just had my 6 week chat after treatment. I was looking forward to getting all clear/gone in my 12wk mri and pet scan. They told me that after my scans, it's unlikely that I'll get the all clear, a small amout of people get all clear, and a small amount of people need more treatment but most patients are in the middle where there is so much scaring they can't really see a clear picture.

I'm so confused.

When will I be in remission.

XxxxxBev

  • Hello Bev

    I'm sorry to hear that you've been through treatment for cervical cancer. It's good to hear that your treatment plan has now been completed and that you're currently waiting for more scans in another 6 weeks. 

    It's understandable that you may be struggling with some feelings of uncertainty particularly as these kinds of questions are often never clear-cut. It's not always possible for clinicians to say that you are cancer-free or in remission. The term that we often see people talk about here on the forum is NED or no evidence of disease. In other words, the doctors cannot see any cancer visibly or with the test results that they have. This can be a difficult concept to get your head around and many people struggle for a while with the uncertainty of not having a definitive answer. Hopefully, when you have your next scan the team will be able to give you some reassurance due to the results that they have and this will help you to begin to move forward. 

    In the meantime, I wonder if you might find it helpful to talk things through with someone. I know that this is something that many people have found beneficial after going through cancer treatment. It may be that your hospital has a cancer psychology service that they can refer you to or there may be a charity such as Maggies in your local area that you can access. Alternatively, if you'd like to talk with one of our nurses you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm (excluding bank holidays). 

    I hope you get some good news soon. 

    Best wishes, 
    Jenn
    Cancer Chat moderator