Hi Kadi and welcome to the Cancer Chat community.

I'm sorry to hear you have been diagnosed with DCIS and that you have some concerns about the lymph node removal.

Hopefully some of our members who have been in this position will share their experiences and advice with you soon, but in the meantime, our team of cancer nurses may be able to address some of your questions, so if you'd like to have a chat with them, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and will do all they can to help.

We're thinking of you Kadi and hope you're able to come to a decision about this soon.

Kind regards,

Steph, Cancer Chat Moderator

Hi Kadi

I felt the complete opposite to you when I was diagnosed. I wanted to make sure nothing was overlooked and if that meant removing lymph nodes then so be it. In my case there were three reactive lymph nodes removed, thankfully all three were clear. I would have worried more if my lymph nodes were not removed and checked as its vital to know if cancer has spread. The chance lymphedema is nothing compared to cancer spread.

Mines were removed 6 years ago and I have not had lymphedema.

I do urge you to think carefully about your decision. 

Thank you very much. 

Thank you very much for your advice. 

Thank you very much. 

Kadi

Hi kadi, I wasn't asked . I had biobsys in my breast and from under my arm when I was seen at the breast clinic in May 2020. 

The biobsys came back and showed that cancer had also spread to my  lymph nodes  .

So I was told id need lumpectomy and all my lymph nodes removed from under my right arm.

If I was asked I'd definitely gone ahead and had them removed ,as just wanted the cancer cut out of me.

Yes I did get a few problems  I had seromas develop under my armpit,that's where fluid builds up,I had it drained,it filled up again within a few weeks, it was drained again. Then I went on to develop very mild lymphedema in my right arm,hand wrist. 

I went to my local hospital lymphedema clinic got measured  and fitted with a sleeve.  Didn't get on with the sleeve  ,so didn't bother wearing it. I googled how to do gentle excersises  and  do manually  sweeping  movements,along arm up to my shoulder,and across the top of my breast bone. That helped as well ,as when sitting down raising my arm up slightly on a cushion. 

I didnt lift anything heavy  anymore as they tell you not too.

The hospital doesn't run the lymphedema clinic anymore,but was told if I get any problems to see my gp,who would  refer me and sent me to the  nearest hospital that holds a lymphedema clinic.

But now few years on, I  dont really have any problems with my lymphedema, in my right arm etc ,it was only very mild to start with,and my arm  hands and wrist don't really look any different from my left arm now ,you wouldn't know I have it .

So I'd still have my lymph nodes out even if I'd have known  I'd develop the issues I did go on to develop.  We are all differnt and look at things  differently,.

But only you can make that decision, I know you will make the right one for you.  Good luck .

Thank you for sharing your experience. It’s very helpful and good to know that things improved. 

Kadi

Thank you Kadi.

Hi, so sorry you are going through this ! I had stage 1 breast cancer last year . To be honest I wasn’t given a choice . They just told me they were taking 2 or 3 lymph nodes (sentinel node biopsy ) to check if cancer has/ hadn’t  spread . My opinion is that this on only a good thing as you will then know what treatment you need . 7 months after my surgery there are no real issues . Good luck xx

Thank you very much.