Hello all, hope you are doing well.
It’s been a while since I was on the forum, and wanted to ask anyone who has finished tamoxifen if they experienced similar “symptoms” as me. I hope you can help.
I was on Tamoxifen for 10.5 yrs, give or take. Stopped taking it, on my BC team’s recommendation, 2 months ago. Within a couple of weeks, my non-cancer breast became painful and "bigger”, for at least 3 out of 4 weeks each month - like I’m pre-menstrual almost all the time. I had a WLE and radiation on my cancer side, but that doesn’t seem to have the same “withdrawal”.
(I’m also heavier now than I’ve ever been and just can’t shift the weight, but that might just be my age :))
Anyone else have or had the same breast experience in the weeks post-Tamox, or is this not “to be expected”? I don’t want to go to my BCN just yet in case it’s just things settling down, as the hospital is quite a distance away…
I’m not concerned it’s something similar, but it’s not very comfortable and I’d like to feel “normal” again soon!
thanks :)