Post Car T Cell Therapy

Hi… just wondering if there is someone here that has received Car T Cell Therapy. I had mine in April ‘23 to treat high grade diffuse large B Cell lymphoma that had returned after a short time in remission. 

So happy to report I have stayed in remission since. Have resigned from my career as it was so full on and life’s priorities has changed for me for now and haven’t had a career break for 35 years and I have lots of family abroad. 

 I think some of my expectations with regards to the answers I’m looking for maybe are unrealistic. Basically I’m immune compromised due to the treatment being so successful. I’ve been so careful how I socialise and wear a mask but caught RSV in January and was hospitalised which has really affected my confidence.

I had left work and was ready to go travelling only to be told ‘ maybe best not until April/May… wait to the Covid/flu season eases off. ‘

This just opened up a myriad of questions which I have tried to discuss with my consultant but on my last appointment I saw another consultant in the team who whilst was lovely left me with even more questions. I don’t go back to the team for another year

It would be good to hear from anyone that has since travelled abroad and returned to work post Car T. 

I’ve been living with my diagnosis since Jan 22 and I feel I just want to grasp this amazing chance I’ve been given but want to try strike a balance between being careful and living my life. 

 

  • Hi JMB123,

    I can completely understand your concerns and questions, and the approach you want to take. It's a shame to hear you're not due to see your specialist again soon, and that you were left with more questions last time. It might be worthwhile giving your doctor a call to see if you can arrange to talk things through and to see what is or isn't advisable for you.

    You may also like to have a chat with one of our nurses, who may be able to offer some advice on this. If you'd like to do this, you can reach them on freephone 0808 800 4040 - Monday-Friday, 9-5.

    If you haven't already, do also have a search of the forum (using the bar at the top of the page) for other potentially relevant discussions.

    Otherwise, hopefully you'll get some more replies here soon.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator