Hi… just wondering if there is someone here that has received Car T Cell Therapy. I had mine in April ‘23 to treat high grade diffuse large B Cell lymphoma that had returned after a short time in remission. 

So happy to report I have stayed in remission since. Have resigned from my career as it was so full on and life’s priorities has changed for me for now and haven’t had a career break for 35 years and I have lots of family abroad. 

 I think some of my expectations with regards to the answers I’m looking for maybe are unrealistic. Basically I’m immune compromised due to the treatment being so successful. I’ve been so careful how I socialise and wear a mask but caught RSV in January and was hospitalised which has really affected my confidence.

I had left work and was ready to go travelling only to be told ‘ maybe best not until April/May… wait to the Covid/flu season eases off. ‘

This just opened up a myriad of questions which I have tried to discuss with my consultant but on my last appointment I saw another consultant in the team who whilst was lovely left me with even more questions. I don’t go back to the team for another year

It would be good to hear from anyone that has since travelled abroad and returned to work post Car T. 

I’ve been living with my diagnosis since Jan 22 and I feel I just want to grasp this amazing chance I’ve been given but want to try strike a balance between being careful and living my life.