I had breast cancer coming up to a year ago I’m free now , but I really don’t think that just a mamo yearly is enough screening surely there should be other tests and screening available.
I've said it before, we were kinda taken aback when we found out my wife's screening post cancer was 1 mamo only, especially as she had grade 3 bc, HER2+ cancer, with lymph involvement. No idea if we just had incorrect preconceived ideas after hearing stories about other folk getting scans every X amount of months for the first year, then X amount the year after, and so on for the first 5 years. Maybe it's an American only thing. But finding out this, made us both nervous. Especially given she is very high risk for reoccurrence for the first 2 years.
Whether there's a science that backs up the 1 year mamo or the NHS are cheaping out, we have no idea. But it is not reassuring whatsoever.
I would be very interested in hearing from others about this. Calcifications were found in her right breast (her left breast was the one that had the cancer treatment) not long ago during her 1st year mamo, and the biopsies that came back showed no cancer. But it's been decided, given her history, they want it all out, and to test it again, thoroughly. So she'll get that next month.
But yeah, we totally get where you are coming from on this very subject. Simply seems a cost cutting exercise at our expense. Would love someone to tell us that it isn't. But it does smack of being this.
I am truly in shock o dr this I really can’t see how they are saying this is enough to me it’s no aftercare or thought , just a mamo when we all no the facts that if ot returns ot could be anywhere in our body so I really can’t understand this is only offered .
sorry that your wife has to go through getting these clarifications after her first mamo bless her I hope she is feeling ok .
yes it’s terrible isn’t it to me that’s just like sending you away to get on with it when every person who’s had cancer should be offered more than this surely
My sister was diagnosed with triple negative breast cancer and treated for it 13 years ago whilst living in Canada, she had mastectomy, chemo and radiotherapy. 12 months afterwards she had a full body scan, I am guessing that was standard practice over there, although whilst having chemo the first time a scan had shown it had spread to liver. The doctors had been confident that the chemo had killed the cancer in her liver though. So that may have been why she had a further scan after 12 months. She felt well, however the scan showed that it was back in her liver and lungs.
Not sure what standard procedure is, but they certainly need to do more in this country, my mum was also diagnosed with triple negative bc in 2020, had mastectomy, no chemo or radiotherapy as no lymph node affected, found out last november that it had spread to her bones and lungs, she died within 8 weeks!
I’m so sorry about your sister and mum , this is actual fact then in your family’s case as earlier screening would have detected this in your mums case , I’m so sorry to hear this Ho early how is your sister now ?
Yes, I am sure that a scan after 12 months would have shown the return of Mum's cancer. She had been complaining to the doctor about pain in her back and ribs for months, but they just gave her painkillers and said that it was her fibromyalgia. It may not have saved her, but at least she may have been able to have treatment and maybe some more time with us.
Sadly the 2nd bout of chemo didnt work on my sister, she died 6 months after it being found for the second time.
You take care and keep fighting against this awful disease.
that’s awful what you have been through I feel as it’s those who are family struggle more my poor husband was worse than me . thank you so much for sharing your story about your beautiful family and I hope it wasn’t to painful to bring it up for you .
I have certainly lost faith in the NHS, I finally got a doctor to refer my Mum to an urgent treatment centre for her pain, they took an xray which showed a shadow on her lung, lesions on her spine and a cracked rib. As it was a Friday they advised us to see the GP on the Monday to arrange a CT scan to confirm diagnoses of what they were sure was cancer. GP had to have bloods done before referral for CT, which I understood. However, when bloods came back her Ovarian cancer markers were raised, doctor said he was not allowed to refer her for CT of her chest, until my poor 77 year old mother that was wracked with pain, had to endure an internal ultrasound. It is a box ticking exercise! However, the US never happened as she was admitted to hospital within a week and got her CT in there.
yes same here , no wonder you. Hsve lost faith that is absolutely appalling, it’s like we have to be our own doctor and have to get through the pathway by begging of the feeling of being a nuisance so to speak to her heard .
that’s why o can’t understand why like I said earlier that they only do a mamo as like in your family’s cases prevention could have been done earlier this would have prolonged your mind life and also been much less stressful.
