Hi all,

Our chat page seems to have gone a bit quiet recently.  Hope evreybody is coping OK with MF and Covid or anything else. 

Has anyone had any experience of taking Bexarotene (also known as Targretin) ?  I went for my routine checkup recently at the specialist centre in London and because I am finding it more difficult to control my flare ups with just steroid ointments and phototherapy, they have recommended that I should start taking this drug.  I've read the information they gave me and have done some on line research and the side effects look potentially horrid to say the least.  I'm 72 and at my stage of life quality of life is as important as quantity and I don't want to spend however many years I've got left struggling with the side effects of drugs.  Can anyone comment on how effective it as at controlling the symptoms of MF and what the side effects are like in practice? I'd be very grateful to hear if anybody does have any experience.

Andy