Hi I've been on tamoxifen for four months now and randomly when I wake up from sleep and close my eyes to go back off I feel like my eyes are shaking, twitching anyone else had anything similar I've had my eyes checked twice no problems
I'm sorry to hear about the shaking/twitching you've been experiencing with your eyes whilst trying to get back to sleep Clarelou.
As you'll see on our website, eye problems can occur when taking Tamoxifen but it's good that you've had this checked and no issues were found.
Hopefully some of our members who may have contended with this or something similar will share their experiences and advice with you soon but if you'd like to discuss this with one of our cancer nurses, you can give them a call on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.
I know it's not exactly the same but a couple of months after I started Tamoxifen last year, first thing in the morning my whole body would shake for a good 5-10 minutes, and I would be freezing cold. It was the only time of day it happened. I must admit I was taken off Tamoxifen about 4 weeks ago and it's stopped.
As said I know its not the same but wondered if this might be related somehow.
