Hi 

You have done amazing too ! 
I know what you mean about revisiting the last year in your mind , I think it's going to take quite a while to process all we have been through.

The drug Abemaciclib is being offered to primary BC hormone positive patients who are classed as high risk of recurrence by a combination size , grade or nodes ( my tumour was 55mm with one lymph node positive.You can only have been on hormone therapy for 12 weeks and I've been 10 weeks so just fit that window, you can only get it from chemo unit after blood tests so should get it this week. I am the first in my hospital to have it for primary but will be offered from now on for patients who fit the criteria. As with all drugs comes with side effects but luckily like you my hormone tablets have been fine so hopefully these side effects will be minimal too, as I will have to take both.

Good to know about the omega 3 , my husband takes them anyway.

Take care xx

Hi Minty that's great though that they can offer you something else if yr high risk isn't it!

Mine came back as intermediate risk so I just have the letrozole now like I say. I hope you have no or minimal side effects with it too my dear.

you take care too, best wishes for the future lovely xx

Such a lovely post ... thank you 

I wish you lots of fun & adventures ️

Thank you x

Hi Kiera123

It was your post that gave me the confidence to post, so thank you.  I must admit I do keep re reading it as well, makes me realise I'm not alone.  I totally agree with your comment about support after cancer, I must be the only person who cried after having my last Herceptin injection on chemo ward as to me it was my safety blanket.

I wish you many Happy times with your friends and family, especially your grandchildren.

Huge hugs

Bolly50 xx

Hi Bolly, thank you for your kind words. I too cried after my last radiotherapy partly  because I was relieved it was over and partly because as you say yr on yr own! 
I hope you have a supportive family and can start to enjoy life again coz we are only here once it's no rehearsal!

Best wishes to you, take care xxx

I just wanted to say hello and thank you to both minty69 and Kiera123 

I was diagnosed with IDC in June 2022 and have started chemo x4 paclitaxel x4 EC , then for surgery and radio and hormone therapy. 

I stupidly googled everything at the beginning of all this, now I try and find most my information on these chat forums ! 

I just wanted to thank you both for writing so honestly and informativly about your journeys, I've been reading some of the discussions you've posted an and it's really helping me.

Hope you both are well and coming out the other side of this *** storm 

I wish you both lots of love xx

Hi Gemmaclare

Thank you its good to hear that the posts have helped you.

It is a long slog but I feel like im coming out the other side now.I started Abemaciclib which has just been approved for use with primary that meets certain critera , to also prevent recurrance.That has also helped me mentally ,thinking I am doing everything I can to stop this thing coming back.

I'm not sure whether you meet the critera but its worth asking when you start hormone therapy.

I have also learnt thst you have to be your own advocate in this game, in my trust anyway !

Good luck with your journey and please ask if there is any other questions x

Hi

Thanks for replying  

I read about you starting a new medication and was interested in that.

I'll mention it to my consultant when we next speak but I'm not sure I'd fit the criteria.

I've started Gorsalin injections with the start of my chemo , it's to shut down my ovaries and reduce oestrogen. As I'm on chemo for 16 weeks I don't think I'll me able to try that medication you've started. But I'll certainly ask.

I've got a little book with all my questions and queries.

I'd also like to ask about biophosphates treatment for bone strength but again not sure I meet criteria as think that's for post menopausal ladies.

I've also heard about the use of antihistamines with GCSF injections to help with bone pain.

It's amazing how quickly you learn isn't it! 

I'm a nurse, which I'm not sure makes this easier or more difficult. I've already got a pretty good grip on the medical side of things before I started. 

My treatment team treat me slightly differently too being s nurse which again not sure is a good thing or not.

It's my second chemo day tomorrow so just catching up on a bit of washing and house work incase I'm knocked sideways afterwards for a bit. 

Although last time I was out pressure washing the decking the day after! 

Not much keeps my down, I'm a stubborn determined sort!

Much love xx