Non-Hodgkin Lymphoma (DLBCL) - increased LDH levels after CR

Hi Everyone,

My dad suffered with Diffuse Large B Cell Lymphoma and was lucky enough to achieve complete remission post R-CHOP and 2 rounds of Methetrexate.

28 months post CR he's having routine blood tests every 6 months. This week all his bloods were looking positive e.g. Lymphocytes were finally back to normal etc which is fantastic. The only result which was a bit off was his LDH level. It was 496 and had risen from 466 over three months. His consultant said this was slightly above the UNL (upper normal limit) of 480 but wasn't a worry at this stage. She said because it's risen slowly over the last few months she'll pop a blood test in for 3 months time but reiterated not to worry...

...of course this has been quite triggering for me and I can't help but get myslef in to a panic. I wondered if anyone knew more about LDH or has had a similar situation?

Many thanks in advance :)

  • Hello Sunnydaysahead22 and a big welcome to Cancer Chat! 

    It's great to hear that your dad has been in complete remission for Non-Hodgkin Lymphoma and that they are carefully monitoring him with routine blood tests being done very 6 months. Fantastic news too that his lymphocytes are finally back to normal and I can understand why you were a little concerned that his LDH level had risen over three months but it sounds like his consultant isn't particularly worried. It's good they are taking it seriously though and that they will be doing another blood test in three months' time to keep track of it. 

    I hope that you will hear from other members of this forum who have been in a similar situation and experienced slightly raised LDH levels and that they will be along shortly to share their story with you. 

    Feel free also to give our cancer nurses a call on this free number 0808 800 4040 - it may help to talk things through with them so don't hesitate to get in touch with them. Their line is open Monday to Friday from 9am to 5pm. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

     

  • Hi Lucie,

    Thank you for kindly taking the time to respond, it's much appreicated. Yes, I'm very glad they're monitoring him and trying to focus on the fact the other bloods had mostly improved or stayed the same. He also seems very well in himself and the clinical check all went well.

    Many thanks!