Advice please

Hello,

I was diagnosed with a uterine pecoma 6 years ago following a hysterectomy due to ongoing pain and a huge mass of fibroids. I was advised to have my ovaries out as the tumour showed signs of malignancy, which I did 6 months later.  I didn't have any further treatment after but have had fairly regular MRI scans since. My consultant is implying that I don't need to have these scans much anymore, but I have read that it is common for pecomas to return many years later. Please can I ask how long others have been monitored for following a malignant tumour. Thank you so much! X

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  • Hello SG and welcome to the forum.

    Hopefully some of our members who have been in a similar position will share their experiences and advice with you soon but if you're not happy with what the consultant has told you then you could try getting a second opinion.

    Our team of cancer nurses are available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m if you'd like to discuss this with them as well. They're very supportive and will do all they can to help.

    I hope you're able to get some clarification and peace of mind over this soon SG.

    All the best,

    Steph, Cancer Chat Moderator

Reply
  • Hello SG and welcome to the forum.

    Hopefully some of our members who have been in a similar position will share their experiences and advice with you soon but if you're not happy with what the consultant has told you then you could try getting a second opinion.

    Our team of cancer nurses are available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m if you'd like to discuss this with them as well. They're very supportive and will do all they can to help.

    I hope you're able to get some clarification and peace of mind over this soon SG.

    All the best,

    Steph, Cancer Chat Moderator

Children