Tongue Based Cancer - One year on

Hi Everyone

I am now 13 months on after having 6 weeks of Radiotheraphy and Chemo, cancer had spread to right hand side of neck into the lymph nodes and a large tumour under the base of the tongue.

I am in remission and want to give everyone who may be goiung through this treatment or still in early stages after treatment that things do get better. I do have some  taste issues, espeically with sweet things, fruit and saliva is limited, but apart from that everything is more or less normal.

I can fully enjoy life, go out for meals without worrying what the menu is.  Looking back it was probalbly this Jan,  one year on from when treatment  finished, where I felt my full energy levels return, before that I would still get tired at times. I am very active and gradually got my fitness back to pre cancer. This has really helped my mental state, and overall mindset to remain posiitive.

I still remain positive that further improvements will happen and currently trying Hypnotherapy to see if that can re-wire the brain for memories of taste. I just want to expore every avenue and I have nothing to lose if it doesnt work. 

I hope this message may give some hope that things can and do change for the better.

Phil 

Parents
  • Hello Phil

    I just wanted to post to say thank you for sharing your story.

    I know many new members of the forum with similar diagnoses describe feeling overwhelmed and having so many concerns. I'm sure that your post will help to reassure others in the future. 

    Do let us know how you get on with the hypnotherapy. It would be interesting to hear if you get any positive outcomes with your taste. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

Reply
  • Hello Phil

    I just wanted to post to say thank you for sharing your story.

    I know many new members of the forum with similar diagnoses describe feeling overwhelmed and having so many concerns. I'm sure that your post will help to reassure others in the future. 

    Do let us know how you get on with the hypnotherapy. It would be interesting to hear if you get any positive outcomes with your taste. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

Children
  • Hi Jenn

    Thanks for your kind words, I am happy to join any chat groups or calls, it feels at the moment that my experiences could help others and struggling to find avenues to do that.  I have also offered my services to the clinic where treated to also meet others. They have said if anyone else gets similar they would contact me and get me to come in and talk to them. I feel that I could really help post treatment as that is when you do become more isolated from seeing the specialists day to day and find yourself more on your own.

    For me I set msyelf a challenge to get my fitness back, pre-cancer I could run 10k in morning and do a gym session evening without any issue. When I first started training I could not even run 1k or do any more than 5 press ups.

    I did not really have an appeptite for months, only recently that has returned to anything like normal levels,  so focused on training and mentally I knew I needed food to for this, so whereas before I got pleasure from both, food became functional to support my training.

    It would be great to be a guide for others going through this journey, you can tell friends/family about losing taste, but unless you have been through it no-one else can really understand. A few people at work got COVID and lost tatse, then they understood a bit more about what this treament can do to you on a more permanent basis.  

    For me my fitness challenge I set myself,  helped me stay mentally positive, there were some darker days,  but I tried not to let them affect me too much overall and I would love to help others,

     

    Phil  

  • Thanks Phil

    It's always helpful to know when community members are happy to chat with others about their story :happy: