Long term side effects from chemo

Hi, I a wondering if anyone else was suffering from long term side effects of chemo. I had carbo/taxol for womb cancer. I was so poorly during the chemo. Twice had to be admitted to hospital and be put on intravenous antibiotics and have blood transfusions. During the whole process I could barely walk, I was extremely fatigued all the time, I was breathless, was vomiting, had diarrhoea, couldn't eat, had although bone pain and just felt so I'll. it got that bad that I couldn't complete my last chemo session because I was so poorly. That was nearly 2 years ago. I am currently in remission but I still feel dreadful. Some days I can still barely walk and feel so breathless and I constantly feel absolutely exhausted all the time. My legs feel so weak and painful. Some days I feel ok ish and them others I feel as though I'm still having chemo. I have spoken to my GP and my McMillan Nurse and all have said I have long term effects from chemo. I'm currently waiting for a bone scan to check for Osteoporosis to see if I am suffering with this too. I was wondering if anyone else was suffering long term effects like this and how they are dealing with it. The McMillan nurse has told be some people suffer with the long term effects for years and even life. I also had radiotherapy which also helps increase the risk of long term effects. This is really affecting my quality of life.  

  • Hi

    I was poorly with neutropenia during chemo and only had 3 sessions instead of 6. Since my masectomy, chemo and radiotherapy I had terrible fatigue and achy bones. I am on Anastrazole, I was offered Tamoxifen but decided to stay on Anastrazole as in the last few months my energy levels have returned and am feeling much better. I think we underestimate the amount of time for your body to fully recover . I hope you start to feel better soon

    Best wishes

    Silver 

  • Hi, I'm sorry that you have been affected like this. I was on taxol for breast cancer, and I had serious mobility issues, fatigue etc which admittedly improved after chemo ended. For me, radiotherapy was the straw that broke the camels back in the axillary area, and I developed lymphodoema quickly afterwards. That gets me down sometimes. I am also on anastrazole and had painful joints for the first six months, but that seems to have eased. But yes, in some ways my quality of life has been negatively affected as I can't do everything that I used to with my right arm - like working on my allotment to the extent that ai used to. However, I have adjusted my life accordingly, and there are some good things, but I'm not always brilliant at it as i sometimes forget that it's normal to take two years to recover even for the best of people. Quite often I have alternate days ... a very good day, then a resting day. On rest days I might listen to a play, or an audio book, or watch a good film, catch up with friends on zoom, write emails etc. Feed the birds, arrange some flowers in a vase or whatever. Before diagnosis, I was always so busy, busy, and lots of things were put off to next week, next month, next year etc. Often they never happened at all. So in that way, the cancer has enriched my life as do those things now or tomorrow or this week. I've written a short list of things that I'd like to do with my life in 2022 - get a snazzy new haircut (my hair is growing now), enter a poetry competition (I've always wanted to do this and a local poetry group has invited me to their workshops as a complete novice) and have a little trips out with a friend, my son, or alone just to appreciate new scenery, a wood or an outdoor cafe. But this whole adjustment thing was a process that I had to go through, and it took time. If I keep my sun high (the nice things in my life), then the shadow beside me seems a little smaller. Take care, x

  • Your story is so similar to mine. I had just two sessions of chemo the first resulting in neutrapena, the 2nd full on sepsis (horrendous). I then moved onto Radiotherapy and have been on Anastrazole now for 23 months, mild symptoms achy knees and right hand elbow. But right now my finger nails are really weak and flaky. Have you heard of Biotin working? Wishing you all the best

  • I'm not too achy now but often tired mid afternoon. Are you on Adcal 3 for calcium? I took hair, skin and nails vitamins for a while and that has Biotin in. Now I take Superfoods greens and fruit. It's the oestrogen that we are lacking. I've thought about stopping Anastrazole but my consultant has given me 10% odds of stopping the cancer returning, so will carry on. I think it's affected my teeth too.

    stay in touch!

    Silver