We do have quite a few members here on the forum who have been diagnosed with ET. I'm sure that if you posted on one of the active threads with a little more information about your question that you would get a reply. This thread here is quite active at the moment as well as this thread which has a lot of members with ET post on.
There's some useful information about ET on the Blood Cancer UK website which may help answer your questions but if you'd like to talk to one of our nurses for some advice and support then you're welcome to give them a call. They're available Monday to Friday 9am to 5pm on 0808 800 4040.
