Dad has incurable lung cancer

I'm looking for advice on whether to take some time off work to spend with my dad. He has stage 4 lung cancer and was given 6 months at diagnosis which was a month ago. I'm not coping. I'm an only child in a small family so it's down to me to look after mum and dad. We are very close.  I have a young family and a brilliant husband who has been so supportive. But I'm struggling to manage everything plus my job. I work 3 days a week in a stressful job. My manager gave me 2 days of compassionate leave which I used when my dad was admitted to hospital. Everyone I speak to tells me to get signed off from my GP. I don't feel fit to work at the moment. I cry every day. The time off would also give me time with dad. Even dads Macmillan nurse has suggested I go off sick. Even my HR manager said it's the only way I will have paid leave now and said it wouldn't go against me.  It just doesn't feel right to have time off like that. I'm also worried that I'll need more time when the end comes and I feel guilty leaving my teammates to have to take over my workload.  All my friends have said I will regret it if I don't. And I'll never get that time back with him again. Has anyone else had experience of this and what did you do? Is it best to take time off now whilst he's well or when he needs caring for at the end. 

  • Hi Claire, my husband has incurable stage 4 lung cancer but has survived for three years.  He would be extremely upset if our daughter's altered their lives to be with him, he apprectes every minute he sees them but also gets tired so is content to have time without them.  I truly think working keeps you sane, yes it's hard but what are you expecting to do with Dad all week?  Most parents want a normal life despite cancer, so speak to him about this big decision.   When I took time off and went back, then had to go off on the sick again I was called into HR as each period of sick leave was going against me.  So have a good talk with Dad and taking times off months down the line when he deteriorates will also be difficult because no one can ever tell you how long it will be.  My thoughts are with you all, love Carol 

  • Thank you so much for your advice carol. I'm sorry to hear of your situation with your husband . What you say makes a lot of sense. I know dad wouldn't want me to change anything for him but given the short time we have (although nobody ever knows for sure) it just made work seem so insignificant. I think I'm just scared that when they say months they can never be certain and I've heard so many tales of people deteriorating so quickly that I think I'm panicking about missing out on precious time with him.  I think I might book a weeks holiday just to give myself a little bit of headspace to try and process what's happening and then take each week as it comes. I will also speak to dad and see what he thinks. Thank you and sending love to all your family.  xx 

  • Hi Claire, that sounds like a sensible plan!  You've already learnt to take it a week at a time, we take each day at a time and don't look ahead, you miss the joy in each day if you worry about what will happen months on.  Best wishes to you and your family.  Carol x