Hi Silverlady,

I have multiple myeloma, diagnosed in Oct 2016. I've had radiotherapy and chemo but am not having a transplant.

After my first lot of chemo I achieved a complete response and had a 21-24 month remission. Then followed a further 8 months of chemo, when I again achieved a complete response, so I'm now in remission again.

While not curable, myeloma is certainly treatable and people are living longer with the disease.

My quality of life would be considered poor by other people but for me, it's more than adequate. Some people though, continue to lead a very active life.

It's not possible to tell you how things will go with your son as each person's myeloma is individual to them. Please though, ask me any questions you want and I'll answer to the best of my ability.

Another good site to look at is myelomabeacon. It's an American based site but very informative.

About my only advice would be to live in and be sufficient to the moment. Just deal with the 'now'.

That's about it for now, please don't hesitate to ask me anything.

Best Regards

Taff

Hi Silverlady,

I have multiple myeloma, diagnosed in Oct 2016. I've had radiotherapy and chemo but am not having a transplant.

After my first lot of chemo I achieved a complete response and had a 21-24 month remission. Then followed a further 8 months of chemo, when I again achieved a complete response, so I'm now in remission again.

While not curable, myeloma is certainly treatable and people are living longer with the disease.

My quality of life would be considered poor by other people but for me, it's more than adequate. Some people though, continue to lead a very active life.

It's not possible to tell you how things will go with your son as each person's myeloma is individual to them. Please though, ask me any questions you want and I'll answer to the best of my ability.

Another good site to look at is myelomabeacon. It's an American based site but very informative.

About my only advice would be to live in and be sufficient to the moment. Just deal with the 'now'.

That's about it for now, please don't hesitate to ask me anything.

Best Regards

Taff

Taff thank you so much for your reply I couldn't sleep last night my mind churning over the worse senerio but having read your post I'm a little more positive about the immediate future. We have to be strong for him. If doubts creep in I'll know there's help on here.