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40 year old son diagnosised with Multiple myeloma

Sliverlady
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How to get help and answers for my son. Dr didn't give what stage of multiple myeloma my son has. Radiotherapy and chemotherapy and stem cell transplant. I am so scared to ask questions and yet need to know what the next few months are going to be for my son. My husband has prostrate cancer and can't cope with what is happening with our son. Where do I turn to please I'm so frightened won't be able to help my beautiful boy I'm a mess at present.

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    Hi Silverlady,

    I have multiple myeloma, diagnosed in Oct 2016. I've had radiotherapy and chemo but am not having a transplant.

    After my first lot of chemo I achieved a complete response and had a 21-24 month remission. Then followed a further 8 months of chemo, when I again achieved a complete response, so I'm now in remission again.

    While not curable, myeloma is certainly treatable and people are living longer with the disease.

    My quality of life would be considered poor by other people but for me, it's more than adequate. Some people though, continue to lead a very active life.

    It's not possible to tell you how things will go with your son as each person's myeloma is individual to them. Please though, ask me any questions you want and I'll answer to the best of my ability.

    Another good site to look at is myelomabeacon. It's an American based site but very informative.

    About my only advice would be to live in and be sufficient to the moment. Just deal with the 'now'.

     

    That's about it for now, please don't hesitate to ask me anything.

    Best Regards

    Taff

     

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    Hi there ..

    I got through my cancer , once I got my head around it ... quite logically... and with a tad of humour .. but when my son who has type one diabetes was being tested with colonoscopy and one down throut on same day ... I fell to pieces .. I was nearly hysterical, thinking of him having to go through this .. 

    It was only buddies on here holding me up that day, that got me through .. luckily it wasn't cancer .. but I realise our worst fears are our kids getting it ...

    Taff has very wise words ... so hold on to them .. you can come on here and vent and cuss at cancer .. there's always someone here that will hold their hand out to you .. 

    Sending you a vertual hug from one mum to another ... Chrissie  

  • Offline in reply to Taff

    Taff thank you so much for your reply I couldn't sleep last night my mind churning over the worse senerio but having read your post I'm a little more positive about the immediate future. We have to be strong for him. If doubts creep in I'll know there's help on here.

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