Hi Dawnidoodah. So sorry you're having to go through this. My daughter has been using it. She has her last weekly treatment of 12 this week (hooray) and has kept her hair because of it.  So I would say its worth persevering if you can tolerate it.

She also has a drowsy spell part way through her treatment. It's when they infuse Piriton and because it goes straight into her system (she has a PICC line) it makes her drowsy. Once through that she perks up again.

She also has some anti sickness meds infused so maybe it's worth asking if that will help you.

I wish you luck with your treatment. Please let us know how you get on......Irene x

Hi Irene, sorry for my delay in responding, I haven't been on my laptop for a while. 

I am so sorry to hear your daughter has had to go through the Chemo and thank you for taking the time to respond to me. 

I also have a PICC line so I have made a note of your comment about the infusion and will certainly be asking them for different anti-sickness meds. My next session is next week as I am on 3 week intervals which is probably a good thing because I needed that time to make the experience fuzzy enough to consider it again.

You message has given me encouragement that it might actually be worth it. so I will try again.

Thank you so much, and sending love to you and your daughter

Dawn

Hi Watson49

It is really good to hear that the cap is working for you,

I must admit although I knew it would take longer with the cold cap I hadn't realised I would have that natty bit of headgear on for 5 hours until I was in the chair and being hooked up!

I am going to ask in my pre-assessment if there is anything they can do to stop the nausea, I had a trainee nurse with me for most of the time and my husband for the 90mins you have to wait after. I tried to keep talking and distracting myself but the sleepiness and sickness just took hold and would not go away

Hearing from you and Irene has given me hope that there is a way round this and I am also taking the attitude that just because it happened last time it doesn't mean it will next time

Keeping my fingers crossed that your sessions continue to go well - Dawn

Hi dawn,

I had my 3rd chemo today and used cold cap again. The 1st half hour was bad then ok after that. The worst part for me today was the chin strap, no nausea though. I take my sister in law with me who used to be a nurse and she never stops talking so shes a great distraction for me, think I would find it hard if I was on my own and I'd be clock watching. Hope you can continue to use cold cap so far so good for me. Take care x

So glad you’re managing to persevere with it. We used to play Scrabble on the iPad to pass the time. And always a cup of coffee and a ginger biscuit to warm up later in the procedure. 

My daughter has finished her chemo now and the cold cap has worked for her so wishing you lots of luck with yours ...... love Irene xxxx