Having chemo or having good memories with the kids!

hi I’m 39 years old mother of 3, with stage IV 

colon cancer with metastasis to liver, peritoneal, 

and pelvic area. I was given less the 12 months to live. 

I’ve started chemotherapy abroad as NHS cut off this medication 3 years ago because it was too expensive. 

Im on 5 session having the worst side effects ever,

my poor husband is taking care of 2 out kids. I’m looking after my little one with the family’s help. 

My treatment is private and extremely expensive, but an uncle is footing the bill. 

But now I’m so bad I’m afraid I’m loosing all this time with my kids to be sick. 

I’ve been very strong person, but chemotherapy is killing me and I’m afraid it won’t change the outcome. 

My husband wants me back in the UK but he will need to quit his job to look after me and the kids.

We pay rent and there’s no close family to help us.

I really don’t know what to do.  

Parents
  • Hello

    can I ask what chemo you are having? I am a 40 year old mother of three, aged 10, 8 and 4. I was diagnosed on the 1st of August with stage 3 oesophagus cancer with mets to lungs and liver.

    the initial doctor I saw was very negative and dismissive and seemed determined to tell me when I would die. Having not even started treatments yet I thought that was a bit much and asked to be referred. 

    Luckily my new oncologist has a much more balanced view and said because of my age and having never smoked etc he can’t give me a ‘time frame ‘ as I don’t fit with the general statistics for this cancer.

    my point is this, after 4 chemo sessions of cisplatin which I have with capecitabin chemo tablets all of my rumours had shrunk by more than 50% .

    my oncologist has extended my chemo from 6 to 8 sessions because he said I have responded far better than anyone expected.

    im hoping it will shrink further and then I will push for an operation which I was initially refused.

    please remember that you are a statistic of 1 the doctors do not know how the cancer will respond to treatment until you actually have it. 

    Is it not possible that you could return to the UK and have a different type of chemo and be with your children. Chemo does make you feel like poo but if it works then surely it’s worth it.

    good luck and take care.

  • Hi Krang,

    Sorry I missed your post, I was away on holiday. It’s so good to read about someone else with OC who has a better than expected outcome from the chemo. 

    Best wishes

    Dave

  • Thanks Dave,

    how are you getting on? 

    I’m seeing my oncologist tomorrow to find out the latest ct scan results and then my last ( hopefully) chemo is on Thursday.

    i won’t be sorry to see the end of that!

    best wishes 

  •  

    Hi Krang,

    I just wanted to wish you all the best for your results tomorrow.

    I am so glad to hear that your chemo has been so successful. I'm sure that you'll be glad to see the back of it on Thursday.

    Kind regards,

    Jolamine

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