Chronic fatigue syndrome and cancer treatment

I have suffered with Chronic fatigue syndrome for about 3 years and just about coping on my own.

I'm a week away from going in to have a lumpectomy and then (hopefully ) just radiotherapy and hormone treatment.

I worried about the side effects and coping with daily living and working. 

Has anyone been through this too and how did you cope.

Parents
  • Hi Lemondrizzle,

    I was diagnosed on 17th October 2016. In the few weeks before and after diagnosis, I got very ill, very quickly.

    This included fatigue, which was exacerbated by chemo. Radiotherapy didn't appear to add to it but may have done and I've been fatigued ever since, worse some days than others.

    There are days when it seems an enormous effort just to be alive. Or maybe 'awake' is a better word. I don't actually put any effort in, it just feels like that. No matter how much sleep I may get at night, from none to lots, and it's always disturbed, I fall asleep randomly throughout the day. No amount of sleep will find me refreshed.

    I cope by not caring. Acceptance of the way things are from moment to moment. I'm fortunate in that I have a measure of cognitive impairment which renders me incapbale of worrying or pondering. I've never had a 'what if' or a 'why me' feeling or thought since diagnosis. Sorry, I realise that's not very helpful to you.

    What it's given me though, is an appreciation of the benefits of not worrying, when I compare my story to that of most others.

    I'm a firm advocate of anti-depressants. I take duloxetine, a magical pill for me, as it doesn't allow me to have a negative thought for more than a few seconds. Many people have a resistance to taking anti-depressants, my wife included but I can't understand why.

    I don't suggest that they'll help with fatigue but they might help by letting you be not so concerned by it. Or indeed by any other worries. And they don't turn you into an emotionless zombie.

    I've no idea if any of the above will be of help but I wish you all the best.

     

    Best Regards

    Taff

Reply
  • Hi Lemondrizzle,

    I was diagnosed on 17th October 2016. In the few weeks before and after diagnosis, I got very ill, very quickly.

    This included fatigue, which was exacerbated by chemo. Radiotherapy didn't appear to add to it but may have done and I've been fatigued ever since, worse some days than others.

    There are days when it seems an enormous effort just to be alive. Or maybe 'awake' is a better word. I don't actually put any effort in, it just feels like that. No matter how much sleep I may get at night, from none to lots, and it's always disturbed, I fall asleep randomly throughout the day. No amount of sleep will find me refreshed.

    I cope by not caring. Acceptance of the way things are from moment to moment. I'm fortunate in that I have a measure of cognitive impairment which renders me incapbale of worrying or pondering. I've never had a 'what if' or a 'why me' feeling or thought since diagnosis. Sorry, I realise that's not very helpful to you.

    What it's given me though, is an appreciation of the benefits of not worrying, when I compare my story to that of most others.

    I'm a firm advocate of anti-depressants. I take duloxetine, a magical pill for me, as it doesn't allow me to have a negative thought for more than a few seconds. Many people have a resistance to taking anti-depressants, my wife included but I can't understand why.

    I don't suggest that they'll help with fatigue but they might help by letting you be not so concerned by it. Or indeed by any other worries. And they don't turn you into an emotionless zombie.

    I've no idea if any of the above will be of help but I wish you all the best.

     

    Best Regards

    Taff

Children
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