Unhappy that my mum isn’t allowed to die at home or hospice

2 years ago my mums breast cancer returned and is now in her bones / liver and brain. she went into the hospice to die in Feb and then weirdly did not die as predicted by her consultants. so was asked to move to a nursing home, she surprised everyone by still being with us now in July & until very recently was desperate to be mobile and not forced to stay in bed and wear incontinance pads.

i have tried in vain to get her home, but nhs /Pallative care nurse that never sees her & her New GP, that had never met her all have the same answers, no funding for 121 care, too expensive, too complicated, what about your own life.

i have no work until September. It will be a mirical if she survives that long. What about her wishes, what about human dignity.

She is not allowed to return to the hospice or go home, except for visits! So I’m being her 121 career whilst the NHS pays a nursing home for 24 hr care but they won’t use the same money to get me a live in care package at home. It’s ludicrous.

Last week she has had a 24 hr sleep and is very sleepy and much less cognitive and mobile.

The nursing home after a family meeting, in which concerns regarding her care where made, has given her 1 weeks notice to leave, so she is now an ‘at risk adult, as she is ‘ technically homeless’. As she is not allowed home. You couldn’t make it up.

it seems unless you have £2500 a week to spend on care you can’t die at home. The CHC will allow you to top up nursing home fees but not at home care packages.

I am honestly praying to god everyday, to let my mother die, quickly and painlessly. She has no dignity and no one is listening to her wishes.

Parents
  • Hiya,

    A bad situation. I'm going to die at home. If I was in your mum's position, my family would simply have taken me home. And nobody would have stopped them.

    I think hospitals and such places have a legal duty of care and do what they think is best, which will not always accord with the wishes of a patient. But their saying you can't go home is simply that, them saying it. 

    There is no invisible mallet that will smite you if you choose to take your mum home. 

    When I'm in hopital, I make the decision to go home, regardless of what I'm told. And I have been told on numerous occasions that I can't go home yet.

    It's surprising how they soon rush to get things done, like discharge papers, once they see you on the way out.

    The caveat of course, is that you must recognise that you are taking responsibilty., and accept the consequences.

    I have no idea of the legalities of the situation but as you're effectively taking her home to die, I can't see there'd be any problem.

    If it were me, I'd just take her home and grant her what might be her last wish and the ability to die with some dignity.

     

    Best Regards

    Taff

     

     

  • PS A quick search shows for example "If the individual’s need for care is a health need then there is funding available through the NHS called continuing health care.  This funding pays for the individuals care costs in full, regardless of whether they are receiving care from carers in their own home or if they are in a residential or nursing home."

    Wave a Solicitor at the GP.

     

  • Hiya,

     

    thank you you for this - she has full funding on the NHS continuing health care. But I was told they would never fund care at home.

     

    i found an alternative care home for a live in care the same price as the nursing home. But they said - A) they would never fund it & B) that it wouldn’t be enough care to cover the 24 hrs a day.

    I was told I would get x 4 nurses a day & nothing at night and not be able to cope.

    Then I was told if mum had a seizure or fell out of bed and broke her hip, she would be sent into  hospital and never come out & it would be very distressing for her.

     

    i said she could break her leg or have a seizure any where any time, but they still refused.

Reply
  • Hiya,

     

    thank you you for this - she has full funding on the NHS continuing health care. But I was told they would never fund care at home.

     

    i found an alternative care home for a live in care the same price as the nursing home. But they said - A) they would never fund it & B) that it wouldn’t be enough care to cover the 24 hrs a day.

    I was told I would get x 4 nurses a day & nothing at night and not be able to cope.

    Then I was told if mum had a seizure or fell out of bed and broke her hip, she would be sent into  hospital and never come out & it would be very distressing for her.

     

    i said she could break her leg or have a seizure any where any time, but they still refused.

Children
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