Today the hospice nurse visited!

It was with mixed emotions that I saw the hospice nurse today.  

As I live alone I have decided that I will end my daysin the local hospice and the wonderful nurse was so helpful.  She will be coming back next week and has given me homework - put my affairs in order by the time she comes again.  She is organising prescriptions for all the things I now have to buy myself, a wrist alarm in case I need help, visits to complementary therapies at the hospice and attendace allowance.  She said I can go to their daily get togethers where they do art classes etc with lunch.  She put my mind at rest with the pain relief saying that if it gets too bad they will take me in for a week and sort me out.

I just have to say how relieved I am, and can now stop crying wondering what was going to happen to me.

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  • I just want to say a huge thanks for all your replies.  This forum has kept me sane for such a long while and the amazing people are always there to help with everything.

    I do have family and lots of friends but when you live alone there is a lot of time when you need someone to talk to - and you are always there.

    This is not a journey any one of us want to take but thank you all for being by my side along the way. x

  • I'm sure they have computers in the hospice too

    You better post and let us know how you're getting on or we'll be round there to bust you out ! ;)

  • That made me laugh out loud,  Graham, and when I eventually go in, I shall take that thought with me to make me smile.  :-))

  • Hi Pauline, 

    I just wanted to add my love amd support to,your thread. 

    I have just had a two week stay in my local hospice as my pain relief regime had got out of control. 

    It sounds as if your hospice offers similar things to the one I stayed in (maybe they all do?) I was offered therapies, spa treatments, pastoral care, practical help etc amd the food was phenomenal - even for a lass with a small appetite! 

    An emotional post for your forum friends to read, Pauline, but you are loved  and supported on here - plus we've got Graham with a plan for a break out if you don't keep in touch. 

    Sending love and hugs, Jo xx

     

     

  • Hi, Jo, how is your pain now?  I know some of your cancer is the same as mine so I suspect some of the pain will be similar.  It isn't good that we have this awful disease but it is comforting to travel the journey, albeit at a different pace, with others, whilst we have people like Graham keeping an eye on us.  When I was much younger I used to have a t shirt that had the slogan 'Butlins escape committee' on it.   Perhaps we could have something similar!

  • Hi Pauline, 

    Really sorry I didn't get back to you after you'd kindly posted! 

    My new pain relief programme seems to be going ok - drowsiness is preferable to pain and I think the radiotherapy I had has reduced the bone pain I'd been experiencing. 

    Anyway, enough of me! How are you getting on? 

    Sending a big hug, Jo xxx

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  • Hi Pauline, 

    Really sorry I didn't get back to you after you'd kindly posted! 

    My new pain relief programme seems to be going ok - drowsiness is preferable to pain and I think the radiotherapy I had has reduced the bone pain I'd been experiencing. 

    Anyway, enough of me! How are you getting on? 

    Sending a big hug, Jo xxx

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