Why a sleeping EEG?

My daughter is under a neurologist following a series of fainting fits (usually 3-5 years apart) although the last one was classed as a seizure (March 2015).  She has had various scans including MRI and EEG and when she had her follow up appointment in December 2015 she was told there was no sign of epilepsy but the MRI showed a tiny cyst 'outside her brain' which they would keep an eye on. Naturally she had her driving licence revoked until investigations are complete.  Her neurologist said he would send appropriate paperwork off.

Now, out of the blue she has received a letter saying her EEG was negative (no other information) and they have recalled her for a 'sleeping EEG' plus another MRI to check on the cyst. It's her birthday tomorrow and this was not the way we had  expected to celebrate it. I am so concerned that the stress of this letter and now the inevitable wait for new appointments to come through could cause more problems and wonder if there is anything practical I can say or do.  Thank you. Jules

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  • Oh sorry to hear that jules. It's weird she gets all these scans they say no sign of epilepsy and then out of the blew she gets this letter. Like you said the stress could cause more problems. I wonder what's taking them so long to figure out what this cyst is IR what they should do about it. I feel sorry for your daughter that this is happening and she's got her birthday round the corner not good isn't it. The practical thing you could do is its always said but be there for her and tell her everything will be just fine I know from experience that's a lot coming from there mother hugs -Diane x

  • Thanks Diane; gave her all the re-assurance chit chat yesterday when we spoke and there will be plenty of hugging going on tomorrow when we gather for her birthday.  It's just a little hard to switch the inner thoughts off but, of course, we all know about the waiting and wondering!

    Just got in from my morning out and about and not amused to find a letter addressed to hubby asking if he still required the 'bed' on loan - speechless does not cover it!!  Jules x 

  • Well at least you had a little chat. That's shocking they sent that letter surely they would of been notified oh his death. I would give them a ring and tell them what happened and why they sent he letter a year later -Diane x

  • Yes, Diane, notified by me so that could come and collect the bed! Would have phoned but they do not work Saturdays so have returned their form duly filled in on his behalf!!  Jules

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