Self employment & cancer

Would love to be bright enough to, don't know what the right words/phrase would be (lobby) to bring it to the attention of the government that being self employed when you've got cancer is not a very easy time. You work all your working life pay into the system but when you get the big C you cannot claim a penny, nothing, zilch. So if I'm a burden of the state I get money thrown at me but the 3 months (not long enough) I've had to employ someone to cover my job (courier) while I've had my stomach removed.a little help would not go amiss but no struggle pal, luckily enough we've got it coverd but how many people have lost everything because they could not claim a penny through being self employed .... Anyway rant over..... Last keemo Thursday  onwards and upwards

Parents
  • Alf,

    Sorry to hear of your predicament. Max is right - PIP isn't exactly generous but it isn't means tested and if you have a terminal diagnosis you will automatically get the higher rate. If you haven't been claiming it I found that I was able to claim it backdated to the date of my diagnosis. The local MacMillan service did all the donkey work for me, which was a help as I was on chemo at the time and feeling like cr@p.

    It isn't being self employed that makes people inelegible for benefits. It is the ridiculously low level at which the bar is set for savings and "other income" which disqualifies people regardless of what our financial commitments are from qualifying for means-tested benefits. 

    I hope your chemo gives you the outcome you need :-)


    Cheers and good luck!
    Dave

     

     

     

Reply
  • Alf,

    Sorry to hear of your predicament. Max is right - PIP isn't exactly generous but it isn't means tested and if you have a terminal diagnosis you will automatically get the higher rate. If you haven't been claiming it I found that I was able to claim it backdated to the date of my diagnosis. The local MacMillan service did all the donkey work for me, which was a help as I was on chemo at the time and feeling like cr@p.

    It isn't being self employed that makes people inelegible for benefits. It is the ridiculously low level at which the bar is set for savings and "other income" which disqualifies people regardless of what our financial commitments are from qualifying for means-tested benefits. 

    I hope your chemo gives you the outcome you need :-)


    Cheers and good luck!
    Dave

     

     

     

Children
  • Thanks for that Davek

    The PIP isn't means tested but you can be very ill and still not be eligible for it, because you are able to look after yourself take your tablets cook bathe and eat. In these days of £1000 + monthly rents and other costs £54 week is not going to save the day. Housing benefit was calculated at a rent of £89 a week! where on earth can you rent anything for £89 a week in the private sector, not even a shared bedsit. The problem when self-employed is that income is often averaged out through the year so you are told that though you've had no income for say 12 weeks, when say the previous 6 months income of your current accounting year is taken into account you come out over the earnings limits. Also if you have savings for your old age instead of an occupational pension as many self employed people do again you are hit.

    However we are indeed fortunate to have the NHS, my treatment I estimate cost £25,000 so far, in the USA without adequate health insurance you would be bankrupt, indeed the biggest cause of bankruptcy in the USA is due to a family member becoming seriously ill and requiring hospital treatment.


     

  • Thanks for all your replays guys, hope it helps me but benefits other people aswell. Like I said I think it ought to be promoted more ( if that's the right word) through what ever sources . Uv still got a job to go back to which I am going back to this week thanks to parcel force even though they had no obligation to stick by me. 3 month is still not enough time off with your stomach removed but just 3 more weeks of keemo tablets then let's see if my body can start repairing it's self.... Onwards and forwards to all of us

  • Hi Kim,

    I was working on the assumption that as Alf was on chemo he would automatically qualify for PIP under the special arrangements for people with a cancer diagnosis. If you know anyone who is struggling to get their condition recognised, please point them towards their local MacMillan service as their advisors have access to a fast track process. The CRUK advice is a bit general in nature, doesn't mention the fast track arrangements and is slightly out of date. CAB have some useful info too:- 

    www.citizensadvice.org.uk/.../ 

    Best wishes
    Dave

  • I am glad you still got your job mate. It does make me angry when I see hard working guys like you having to struggle and continuing to work when you are very ill and at the same time able bodied people apparently collecting benefits with ease. You also have a very demanding job that takes lots of physical energy. All of us here know just how ill you get with cancer, surgery, radiotherapy and chemotherapy. When we say we are feeling tired and ill we really are. I too returned to work long before I really should have. Painkillers and anti sickness tablets helped but I am sure proper rest and convalescence would have sped up recovery.

    Thanks to davek for the useful advice and links. I may need the info in the future.