macmillan nurses, here is my brief experience

I have often read macmillan nurses are wonderful but mine makes me feel a nuisance and I have only spoken to her twice in 2 years. She just seems cold and lacking in human understanding of what we might be going through. 2 years ago I had bladder cancer and have had regular cystoscopy and had just got to the 2 years and thought I had made it and was really shocked to find there were red spots in the bladder that may be more cancer growing. I realise theirs is not an easy job and they have to keep a certain detachment but I do not feel supported by her at all, maybe I am just being over sensitive but then this is a difficult time for me. This is part of my conversation with her. Q Can you let me know the results asap A Yes. I am on holiday next week so you will have to wait until the week after, you can ring me then. Q Can someone else give me the results I really do need to know A Mmmm, you could call my colleague.. Q waiting for the results is the hardest of all A well you will still have to wait for treatment anyway Q I was really upset  when I found the cancer may have returned. A Oh!  Really! Q I was really shocked yesterday. A Well I told you it could recur! Q What might the treatment be if it is the same as last time A You will have to wait and see Q I read on one of the websites that if the cancer returns and its the same type etc as before then after surgery its normal to have 6 weekly visits to have chemo in the bladder. And I really would like to know what the next procedures might possibly be A You will just have to wait and see Q But is this the usual procedure if the cancer is the same as before A yes

Parents
  • Totally agree. My mum has been diagnosed with cervical cancer. I have been trying to get the nurse to call us since we found out, over 6 weeks ago to discuss pain management. Still no response from them. Either she is on holiday, or away from her desk. From all the messages I have left I have not received a single reply. Last week we had to call the ambulance to take mum to the hospital as the pain was unmanageable. Four different doctors at the hospital all said that we should have contacted the mcmillan nurse instead and all were shocked when we said that we had tried to but had not received any response. I wish these nurses were as good as their PR team.
  • Here's my experience...I refused treatment & was refered to McMillan nurse.Being in alot of pain & getting nowhere with my GP was told by receptionist GP uses paramedic who would contact me...no one did.

    I phoned McMillan nurse a few days later only to be told to contact my GP

    .Gosh

Reply
  • Here's my experience...I refused treatment & was refered to McMillan nurse.Being in alot of pain & getting nowhere with my GP was told by receptionist GP uses paramedic who would contact me...no one did.

    I phoned McMillan nurse a few days later only to be told to contact my GP

    .Gosh

Children
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