Hi Dindin

My cancer was in the bones among other places and now they cannot find it on the scans.I hope this does not come across as to annoying .I just throught that i would type because i also looked through the internet when they told me it had spread and felt disparing-how could you not but things have gone better than i hoped.It is not always a steady downward path.

It is great that you have  good doctor and there is someting that can be done .Are you on biophosphates(for strengthing the bones)

Have you looked on the inspire site-the branch for advanced breast cancer.Sadly they do not have the magic answer but they are all dealing with the same things and it is also a good place for comparing notes on new treatments.Dealing with pain is so wearing .You need to have good things to look to as well as the hospital monsters

Hi Dindin

My cancer was in the bones among other places and now they cannot find it on the scans.I hope this does not come across as to annoying .I just throught that i would type because i also looked through the internet when they told me it had spread and felt disparing-how could you not but things have gone better than i hoped.It is not always a steady downward path.

It is great that you have  good doctor and there is someting that can be done .Are you on biophosphates(for strengthing the bones)

Have you looked on the inspire site-the branch for advanced breast cancer.Sadly they do not have the magic answer but they are all dealing with the same things and it is also a good place for comparing notes on new treatments.Dealing with pain is so wearing .You need to have good things to look to as well as the hospital monsters

Hi grumpy,

thank you for replying. I totally understand what you are saying. I think looking things up on the net whist in pain did not help me. I hope things continue to be more positive for you. What are biophosphates? I am on calcichew because I take letrozole but I was told it is just vitamin D and calcium. I was told by the breast care nurse that I would be on 3 medications but I cannot remember what she said. I know what you mean about the hospital monster, it has been my life since June 2010 although I have managed to have a couple of holidays during that time. The thing now is that Is the pain which did not seem to be a problem before. The Fentanyl patches I got from the GP seem to be working today, just hope it continues. Linda