Is there anyone out there with experience of or has had NHL (Non Hogkins Lymphoma)?

Hi

As the title describes i am looking for anyone that has or has had experience of NHL, either first hand or a family member has it as i am looking for someone to talk to about things as my mum has been diagnosed with it and is starting her 2nd round of chemo next week!

So if there is anyone out there that wouldnt mind me bending their ear or just telling me their story i would appreciate it, plus any advice or hints on how i can help my mum along the way i would appreciate that too!

Thanks

Parents
  • Hello.

    I am now 28 years old and had non hodgkins lymphoma B Cell when i was 20 - 22. I had about two years worth of treatment all in all with chemo on a fortnightly basis and then a stem cell transplant at the end. I am now in remission and have been for over 6 years. So i am grateful for that and for everyone that helped me through it. In my opinion the chemo got worse as the time went on but as an individual i think you get to grips with it and learn when you good and bad days are!

    I think your mum will take it at her own pace and know what is right and best for her.

    One thing i learnt to do was to plan thing on my good days.. this was normally when i was taking steriods or the week before my chemo was due this gave me something to look forward to and stopped me getting down and anxious by being stuck in the house. There are so many thing i learnt and did just too many to post. From wigs to infections to what i eat the list goes on!

    The biggest problem i found i had was getting mouth ulcers because of the cells being killed off.... i found sucking ice and lollies really helpful with this and especially keeping hydrated.

    One other thing i really appreciated was having my mum or someone with me whilst i had my chemo it made the time go a lot quicker whilst i was sat there with my drip.

    I hope this helps as well as everyone elses post and best wishes to you all x

Reply
  • Hello.

    I am now 28 years old and had non hodgkins lymphoma B Cell when i was 20 - 22. I had about two years worth of treatment all in all with chemo on a fortnightly basis and then a stem cell transplant at the end. I am now in remission and have been for over 6 years. So i am grateful for that and for everyone that helped me through it. In my opinion the chemo got worse as the time went on but as an individual i think you get to grips with it and learn when you good and bad days are!

    I think your mum will take it at her own pace and know what is right and best for her.

    One thing i learnt to do was to plan thing on my good days.. this was normally when i was taking steriods or the week before my chemo was due this gave me something to look forward to and stopped me getting down and anxious by being stuck in the house. There are so many thing i learnt and did just too many to post. From wigs to infections to what i eat the list goes on!

    The biggest problem i found i had was getting mouth ulcers because of the cells being killed off.... i found sucking ice and lollies really helpful with this and especially keeping hydrated.

    One other thing i really appreciated was having my mum or someone with me whilst i had my chemo it made the time go a lot quicker whilst i was sat there with my drip.

    I hope this helps as well as everyone elses post and best wishes to you all x

Children
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